Maddixfamily31
We are a family of four. My husband, Jeremiah, and our two beautiful children, Isabella (3) and Noah (1). In just a year and half it seems our life has turned a complete 180 so basically, it's time to figure out what's best for our family from here.
This blog is mainly about my son Noah and how, we, as a family, are making it through each day, trying to figure out what is wrong with him. We suspect Lowe Syndrome, however, we are currently searching for doctor's that can help my son better. We're also going through some major life changes as we sell our house and simplify so our son can remain our #1 concern.
MY BLOGS
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In the Moment Productions
http://www.inthemomentprod.com/blog
We are a family of four. My husband, Jeremiah, and our two beautiful children, Isabella (3) and Noah (1). In just a year and half it seems our life has turned a complete 180 so basically, it's time to figure out what's best for our family from here.
This blog is mainly about my son Noah and how, we, as a family, are making it through each day, trying to figure out what is wrong with him. We suspect Lowe Syndrome, however, we are currently searching for doctor's that can help my son better. We're also going through some major life changes as we sell our house and simplify so our son can remain our #1 concern.
LATEST ARTICLES ( 23 )
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My Happy Boy!
Hello all. It’s been a while since I posted last. A lot going on and a lot of stressors too. I’m trying to handle everything in stride. Trying, being the key... Read more
Posted on 30 April 2013 FAMILY -
Stomach Strikes Again!
Well, surprise for us, we ended up in the hospital with Noah this weekend and we're still here. This is now day four. He was admitted for dehydration, however,... Read more
Posted on 30 January 2013 FAMILY, PARTIES -
Go, Noah, Go!
We visited the Gastroenterologist at Texas Children’s this past week to see what we could do to help Noah eat better. For the last couple weeks, he’s been... Read more
Posted on 25 January 2013 FAMILY, PARTIES -
Article: 7 Things You Didn't Dnow About A Special Needs Parent
Good morning all. I don't have much new to report other than Noah is doing a GREAT job in crawling and getting better and better at it everyday! Read more
Posted on 12 January 2013 FAMILY, PARTIES -
How We’ll Always Remember 12/12/12.
I’ll always remember the date 12/12/12. It was the day we found out Noah has Lowe Syndrome. As you know, I’ve suspected it for a long time and we finally had hi... Read more
Posted on 13 December 2012 FAMILY, PARTIES -
Life Never Works out the Way You Plan.
Hi all. I know it’s been a while since I’ve written anything. I just get so focused on everything else around me that I forget to sit down and catch everyone... Read more
Posted on 06 December 2012 LIFE COACH, SELF EXPRESSION -
Noah Maddix: Turning Frowns Upside Down
It’s been a while since I’ve posted anything on the blog. What can I say; life just gets in the way sometimes. So, I guess this entry will be more of a... Read more
Posted on 26 October 2012 FAMILY, PARTIES -
Straws and Parties
Noah is finally drinking from a straw. Go little man! He took to it immediately when the OT gave it to him last week. So, now he's doing it without my help in... Read more
Posted on 04 October 2012 FAMILY, PARTIES -
Live
I made this salvation bead necklace (color meanings below) to remind myself to just live everyday as best as I know how and remember I always have God by my... Read more
Posted on 29 September 2012 FAMILY, PARTIES -
Make Like a Nail and Press On.
The last week and a half has been really frustrating for various reasons but we must keep on, keepin' on, right? As one of my favorite lines from “The Great... Read more
Posted on 27 September 2012 FAMILY, PARTIES -
The Purest Form of Love.
As I look at my beautiful, handsome, boy, sometimes I think God gave him to me to experience what the purest form of love was. Read more
Posted on 25 September 2012 FAMILY, PARTIES -
Dance Like Nobody's Business.
The last couple of days, I've really enjoyed being with my kids. After school yesterday, Bella came home and wanted to play games on nickjr.com. There she... Read more
Posted on 14 September 2012 FAMILY, PARTIES -
Putting the Word "wellness" Back into My Life.
Noah is doing more with his toys. Becoming more interactive with them, reaching for them, holding them for long periods of time. So that is nice to watch him... Read more
Posted on 09 September 2012 FAMILY, PARTIES -
What I Choose for Today.
Sometimes when the world seems out to get you, all you have to do is take a moment, breathe, and look at what you do have, and then smile. It could be worse,... Read more
Posted on 07 September 2012 FAMILY, PARTIES -
Noah's Kisses
I have something I want to share because I think it's just so darn cute and I'm special because Noah is only doing this for me...so far. I believe my son is... Read more
Posted on 07 September 2012 FAMILY, PARTIES -
More Doctors for Noah
Well, today is a more job hunting and trying to figure out the embroidery on my sewing machine that I still haven't had time to mess with. Read more
Posted on 07 September 2012 FAMILY -
Heart-felt Thank-you's, Life and Noah
How do you say “thank you” and have it really mean how you truly feel? Sometimes just two simple words doesn't seem like enough yet, they are two words that do... Read more
Posted on 07 September 2012 FAMILY -
Feeling Helpless and Waiting for My Second Sip of Coffee...
I hate feeling helpless over a situation but when it involves my kids, it makes it so much harder. As I've mentioned before Noah has had issues going to the... Read more
Posted on 07 September 2012 FAMILY, PARTIES -
The “After-Coffee” Update.
I took Noah to the doctor. I informed the substitute pediatrician we saw today that we were told a couple weeks ago to put him on soy toddler formula and she... Read more
Posted on 07 September 2012 FAMILY, PARTIES -
Is It Lowe Or Not Lowe? That Remains to Be the Question.
The substitute pediatrician called me this afternoon to tell me the lab results from checking his thyroid were fine. Sometimes that could be an underlying... Read more
Posted on 07 September 2012 FAMILY, PARTIES
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