Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 352 )
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Combination Therapy in CLL
This week, I am sharing a video of Dr. Jennifer Brown from Dana Farber Cancer Institute where she discusses the possible next steps in combination treatment... Read more
Posted on 23 March 2017 COMMUNITY, HEALTH -
Test Before Treat: The Importance of Genetic Testing in CLL
It is critical not just to get the diagnosis of our blood cancer right which may be wrong up to 20%, but also to know the genetic make-up of our cancer.... Read more
Posted on 12 March 2017 COMMUNITY, HEALTH -
Dr, Jeff Jones on the Importance of Genetic Testing Before Treating Our CLL...
In this short but pithy news interview, Dr. Jeff Jones from Ohio State explains why it so very important to know the details of your cancer before starting on... Read more
Posted on 21 February 2017 COMMUNITY, HEALTH -
Reflecting on the Three Year Anniversary of the Approval of Ibrutinib in the USA
I realized this week that Feb. 12 was the 3rd anniversary of the approval of ibrutinib in the USA that changed the whole treatment landscape in CLL, so I though... Read more
Posted on 16 February 2017 COMMUNITY, HEALTH -
How Ibrutinib and Other Perhaps Other BTK Inhibitor Work Over Time in CLL...
At ASH 2016 in San Diego, CA, I had the honor of once again interviewing Dr. Wiestner from the NIH (National Institute of Health) about the prototype BTK... Read more
Posted on 12 February 2017 COMMUNITY, HEALTH -
Healthevoices Health Advocacy Conference 2017
I have attended a meeting sponsored by Janssen on online health advocacy the last two years and hope to be returning again this April 21-23. It is a strong... Read more
Posted on 10 February 2017 COMMUNITY, HEALTH -
When CLL Goes Bad
Our Breathtaking View into Yosemite Valley this WinterFriends,I just returned home from a long weekend in Yosemite. It was touch and go whether the roads would... Read more
Posted on 03 February 2017 COMMUNITY, HEALTH -
More Good News About My CLL (chronic Lymphocytic Leukemia)
Let me set this up.My particular flavor of CLL has a complex karyotype and a deletion of the short arm of the 17th chromosome. And a clonal Notch1 mutation- Thi... Read more
Posted on 25 January 2017 COMMUNITY, HEALTH -
Good News on My CLL (chronic Lymphocytic Leukemia) to Close out the Year
ZENDOMore good news as the year draws to a close. I recently received my flow cytometry tests from Dr. Byrd done at Ohio State earlier in the month. Read more
Posted on 30 December 2016 COMMUNITY, HEALTH -
The CLL Tribune: Useful Articles on Chronic Lymphocytic Leukemia by Patients,...
I am so proud of and thankful to the patients, caregivers and doctors who wrote for The CLL Tribune: A Quarterly Publication of the CLL Society on chronic... Read more
Posted on 29 December 2016 COMMUNITY -
City of Hope Patient Forum This Saturday and IVIG and Immunoglobulins in CLL...
Dr. Ben KennedyOn Saturday, December 17th, we’ll be at the 2nd Annual Post-ASH CLL Patient Forum at City of Hope Medical Center in Duarte, CA. If you can make... Read more
Posted on 14 December 2016 COMMUNITY, HEALTH -
Jikan Leonard Cohen Memorial Service
We are home from a wonderful memorial service for Jikan Leonard Cohen at the Rinzai-ji Zen Center.Though Leonard and I belonged to the same Zen center and the... Read more
Posted on 12 December 2016 COMMUNITY, HEALTH -
Facebook Live on Genetic Testing in CLL This Sunday, Dec. 4th at 10:30 AM Pacifi...
I am very grateful and a little nervous to not only be presenting our original research (Factors That Influence Patient Treatment Decision Making in the Era of... Read more
Posted on 02 December 2016 COMMUNITY, HEALTH -
PAN Foundation Has Reopened Its CLL (chronic Lymphocytic Leukemia) Financial...
Friends,It is tough enough to have CLL, but for those of us on Medicare, the cost of some treatments can be prohibitive.Organizations such as LLS and PAN... Read more
Posted on 29 November 2016 COMMUNITY, HEALTH -
Professor Hallek: The Micro-environment in CLL(chronic Lymphocytic Leukemia)
Preparations are underway for the annual meeting of the American Society of Hematology, or ASH as it’s commonly referred. We’re scheduling interviews with CLL... Read more
Posted on 21 November 2016 COMMUNITY, HEALTH -
Do You Live Near Austin and Have CLL?
Do you or someone you love have CLL and live near Austin Tx? If so you might want to catch this event. The CLL Society will be represented there by the leader o... Read more
Posted on 08 November 2016 COMMUNITY, HEALTH -
ASH Abstract: Factors That Influence Patient Treatment Decision Making in the Er...
Today in the Conference Coverage section of the CLL Society website, we’ve posted a summary and link to the ASH abstract we wrote based on the results from our... Read more
Posted on 08 November 2016 COMMUNITY, HEALTH -
ASH Abstract: Decision Making by Patients with CLL
Hi,I am so excited.If you haven’t already, please check out our ASH abstract, https://ash.confex.com/ash/2016/webprogram/Paper94576. Read more
Posted on 04 November 2016 COMMUNITY, HEALTH -
EHA 2016: Dr. George Follow Talks About the Changing Management of CLL (chronic...
It was great to meet a few of you in San Francisco yesterday. We’re looking forward to getting a CLL Support Group going there in 2017. Read more
Posted on 01 November 2016 COMMUNITY, HEALTH -
See You in San Francisco Oct 29, 2016 to Help Launch a Bay Area CLL Society...
I am a big believer in the importance of CLL specific support and education groups, run for and by patients and caregivers.As a result the nonprofit 501c3 CLL... Read more
Posted on 27 October 2016 COMMUNITY, HEALTH