Bkoffman

LATEST ARTICLES ( 357 )

• We Need Your Help

  Friends and Supporters,We need your help.The nonprofit CLL Society has prepared a two-minute video that outlines our needs and asks for your donation to allow u... Read more

  Posted on 30 May 2017 COMMUNITY, HEALTH

• 5 Years Since I Started on Ibrutinib for My CLL (chronic Lymphocytic Leukemia) i...

  May 5, 2017 marked 5 years since I swallowed my first 3 capsules of PCI-32765, now better known as ibrutinib or Imbruvica.I still take 3 battleship grey capsule... Read more

  Posted on 21 May 2017 COMMUNITY, HEALTH

• More on Steroids and an Upcoming FaceBook Live This Saturday at 3:45PM EDT from...

  Hi,I just posted the third and final segment of my 3 articles on steroids in CLL. This one is on the possible short term risks and on correlation versus... Read more

  Posted on 11 May 2017 COMMUNITY, HEALTH

• Two Year Anniversary of the CLLSociety.org Website Celebrating with Our 7th...

  This issue of The CLL Tribune (http://www.cllsociety.org/newsletter/) is our 7th quarterly newsletter and I am proud to say it marks two years since the CLL... Read more

  Posted on 02 April 2017 COMMUNITY, HEALTH

• ASH 2016: Dr. Matt Davids of the Combination of TGR-1202 and Ibrutinib for...

  This week, on the CLL Society website we are sharing a video interview with Dr. Matthew Davids from ASH 2016 where we discuss a clinical trial that combines... Read more

  Posted on 28 March 2017 COMMUNITY, HEALTH

• Combination Therapy in CLL

  This week, I am sharing a video of Dr. Jennifer Brown from Dana Farber Cancer Institute where she discusses the possible next steps in combination treatment... Read more

  Posted on 23 March 2017 COMMUNITY, HEALTH

• Test Before Treat: The Importance of Genetic Testing in CLL

  It is critical not just to get the diagnosis of our blood cancer right which may be wrong up to 20%, but also to know the genetic make-up of our cancer.... Read more

  Posted on 12 March 2017 COMMUNITY, HEALTH

• Dr, Jeff Jones on the Importance of Genetic Testing Before Treating Our CLL...

  In this short but pithy news interview, Dr. Jeff Jones from Ohio State explains why it so very important to know the details of your cancer before starting on... Read more

  Posted on 21 February 2017 COMMUNITY, HEALTH

• Reflecting on the Three Year Anniversary of the Approval of Ibrutinib in the USA

  I realized this week that Feb. 12 was the 3rd anniversary of the approval of ibrutinib in the USA that changed the whole treatment landscape in CLL, so I though... Read more

  Posted on 16 February 2017 COMMUNITY, HEALTH

• How Ibrutinib and Other Perhaps Other BTK Inhibitor Work Over Time in CLL...

  At ASH 2016 in San Diego, CA, I had the honor of once again interviewing Dr. Wiestner from the NIH (National Institute of Health) about the prototype BTK... Read more

  Posted on 12 February 2017 COMMUNITY, HEALTH

• Healthevoices Health Advocacy Conference 2017

  

  I have attended a meeting sponsored by Janssen on online health advocacy the last two years and hope to be returning again this April 21-23. It is a strong... Read more

  Posted on 10 February 2017 COMMUNITY, HEALTH

• When CLL Goes Bad

  

  Our Breathtaking View into Yosemite Valley this WinterFriends,I just returned home from a long weekend in Yosemite. It was touch and go whether the roads would... Read more

  Posted on 03 February 2017 COMMUNITY, HEALTH

• More Good News About My CLL (chronic Lymphocytic Leukemia)

  Let me set this up.My particular flavor of CLL has a complex karyotype and a deletion of the short arm of the 17th chromosome. And a clonal Notch1 mutation- Thi... Read more

  Posted on 25 January 2017 COMMUNITY, HEALTH

• Good News on My CLL (chronic Lymphocytic Leukemia) to Close out the Year

  

  ZENDOMore good news as the year draws to a close. I recently received my flow cytometry tests from Dr. Byrd done at Ohio State earlier in the month. Read more

  Posted on 30 December 2016 COMMUNITY, HEALTH

• The CLL Tribune: Useful Articles on Chronic Lymphocytic Leukemia by Patients,...

  I am so proud of and thankful to the patients, caregivers and doctors who wrote for The CLL Tribune: A Quarterly Publication of the CLL Society on chronic... Read more

  Posted on 29 December 2016 COMMUNITY

• City of Hope Patient Forum This Saturday and IVIG and Immunoglobulins in CLL...

  

  Dr. Ben KennedyOn Saturday, December 17th, we’ll be at the 2nd Annual Post-ASH CLL Patient Forum at City of Hope Medical Center in Duarte, CA. If you can make... Read more

  Posted on 14 December 2016 COMMUNITY, HEALTH

• Jikan Leonard Cohen Memorial Service

  

  We are home from a wonderful memorial service for Jikan Leonard Cohen at the Rinzai-ji Zen Center.Though Leonard and I belonged to the same Zen center and the... Read more

  Posted on 12 December 2016 COMMUNITY, HEALTH

• Facebook Live on Genetic Testing in CLL This Sunday, Dec. 4th at 10:30 AM Pacifi...

  

  I am very grateful and a little nervous to not only be presenting our original research (Factors That Influence Patient Treatment Decision Making in the Era of... Read more

  Posted on 02 December 2016 COMMUNITY, HEALTH

• PAN Foundation Has Reopened Its CLL (chronic Lymphocytic Leukemia) Financial...

  Friends,It is tough enough to have CLL, but for those of us on Medicare, the cost of some treatments can be prohibitive.Organizations such as LLS and PAN... Read more

  Posted on 29 November 2016 COMMUNITY, HEALTH

• Professor Hallek: The Micro-environment in CLL(chronic Lymphocytic Leukemia)

  Preparations are underway for the annual meeting of the American Society of Hematology, or ASH as it’s commonly referred. We’re scheduling interviews with CLL... Read more

  Posted on 21 November 2016 COMMUNITY, HEALTH