Community Magazine

When CLL Goes Bad

By Bkoffman

When CLL Goes Bad
Our Breathtaking View into Yosemite Valley this WinterFriends,
I just returned home from a long weekend in Yosemite. It was touch and go whether the roads would be clear enough to get there, but we made it and it was breathtaking!
There was 9 feet of snow where we cross country skied and most of the valley had a thick dusting of white. It was so beautiful.
A week after the 2016 ASH meeting, the CLL Society held our 2nd annual CLL Patient Educational Forum at City of Hope in Duarte, CA. After the forum, I had a chance to chat with Dr. Steve Rosen about the new data that provides hope for patients whose CLL has transformed to Richter Transformation. You can read about it and watch out interview here.
ALL DONE! Thank you to the 233 who participated in our Q4 2016 Reader Poll about your experiences with Testing before Treatment. We're really anxious to dig into the data. Thank you again for your time!

CLL Patient Support Group Meetings Coming Up AND New Ones Forming
Wednesday, February 1st from 4:00 - 5:00 PM in La Jolla, CA:

The UCSD CLL Education and Support Group will be meeting.More information here.
Thursday, February 2nd at 7:00 PM in New City, NY:
The CLL Information & Support Group of Rockland County NY, sponsored by LLS will be meeting. More information here.

Monday, February 6th at 6:00 PM in Indianapolis, IN:
The CLL and Indolent Blood Cancers Support Group will be meeting.More information here.
Tuesday, February 7th at 7:00 PM in Tucker, GA:The Tucker - Family Support Group, sponsored by LLS will be meeting.More information here. 
ALSO - 
We are actively forming CLL-specific support group in a number of cities around the country. To see if your city is one of them, go to our home page  and click on the interest survey for your city. Not listed, but interested in starting one? Email us at support@cllsociety.orgThanks!

Upcoming Patient Education Meetings

  • Saturday, February 4th from 8 AM to 12:30 PM in San Francisco, CAThe Leukemia and Lymphoma Society is hosting theirNorthern California Blood Cancer Conference 2017 at the Hyatt Regency San Francisco. Dr. John Pagel from the Swedish Cancer Institute and a member of our Medical Advisory Board will be speaking at the CLL Breakout Session.Find out more information here. 
  • Saturday, February 18th from 7:30 AM to 2:45 PM in Scottsdale, AZ: The Lymphoma Research Foundation will be hosting Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options which will include disease-specific breakout sessions. There is no cost to attend, but registration is required. Find out more information here.
  • Saturday, March 4th from 9 AM to 3 PM in Anaheim, CA: The Leukemia and Lymphoma Society is hosting their Southern California Blood Cancer Conference 2017 at the Anaheim Marriott. Dr. Herbert Eradat from the UCLA Lymphoma Program will be speaking at the CLL Breakout Session. Find out more information here
  • Saturday, March 18th from 7:30 AM to 3:15 PM in Washington DC: The Lymphoma Research Foundation will be hosting Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options which will include disease-specific breakout sessions. There is no cost to attend, but registration is required. Find out more information here.
In the meantime....Stay strong.We are all in this together.Brian Koffman, MDJanuary 31, 2017

http://cllsociety.org

SaveSaveIf you want a personal response, or just want to stay in touch, please email me at bkoffmanMD@gmail.com. I have no other way of contacting. Thanks. Stay strong. After all, we are all in this together. And please visit our website: http://cllsociety.org for the latest news and information.

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