Diaries Magazine

Could It Be So Simple?

By Babyjandbean
Could it be so simple?
Yesterday was Bean's follow up at the CP clinic at Children's. No, he doesn't have CP but the clinic sees children with various conditions, syndromes and developmental delays.
The appointment went really well. He saw a physiatrist, CNP, occupational therapist, physical therapist and speech therapist. Everyone was really pleased with his progress since his appointment 6 months ago. We are not going to do braces/afo's (yet?) and we will go back for another follow up in 3-4 months.
After the appointment, we stopped in at the lab to have his blood work done for his GI since we were already there. They were doing a full blood panel as well as testing for Celiac disease. I also requested that they test his serum ferritin because a deficiency can cause periodic limp movement disorder.
If you have read this blog for any period of time, you know that Bean is a horrible sleeper. He thrashes all night long and wakes up screaming every one-two hours - some times more frequently. My mother first saw mention of PLMD and iron deficiencies in a child with Williams syndrome so she suggested that I look in to it. When I read about PLMD, it fit him to a tee, so I wanted to test for it.
Well, I have amazing news.
Bean is anemic. I know, I know. It's not a good thing. But it is a good thing; amazing even.
It's really no surprise. He eats like a bird and can't take a regular multi-vitamin because of calcium issues.
I'm not sure how they have missed it this long but it could be the answer we have been looking for. And it's easily fixed. This could explain all of the sleep problems that we have been dealing with for TWO FLIPPING YEARS! Well, not all - we still have the behavioral component to deal with but that comes after we fix the medical problem.
I've been insisting for two years that there's something more going on than a behavioral problem. Something not normal, not right. And of course there's a behavioral problem. I comfort him to sleep and every time he wakes and he's still in my bed. We HAVE to deal with that.
But I was right, darn it. There is an underlying medical reason that Bean can't stay asleep and no amount of melatonin or anything else seems to help. He's deficient in a very important mineral that is causing cramping in his limbs over night.
So here's the plan. We are starting an iron supplement today. We are continuing with melatonin. We will have his iron levels retested in six weeks (or sooner if I have my way). We are going to see a sleep specialist in two weeks to try to fit all the puzzle pieces together and come up with a sleep plan for Bean that takes all factors in consideration. BTW - one of the docs at our regular pediatrician office, Kids Plus Pediatrics, is the aforementioned sleep specialist. Have I mentioned that they are awesome? Really a one-stop shop. They can handle so many things! In the meantime, I'm hoping that Bean will sleep a little more restfully as we begin to restore his iron supply and we all begin to get some much deserved, much needed sleep. Then, we'll start to deal with the behavioral issues...

When I got the news this morning, I was so happy that I cried. Yes, happy tears. Again, not happy that Bean is anemic but overjoyed that we might finally have our answer.
Could it really be so simple? Oh, I hope so!

You Might Also Like :

Back to Featured Articles on Logo Paperblog

These articles might interest you :

  • Big Food Giants Manipulate Public Health Policy in China

    Food Giants Manipulate Public Health Policy China

    Coca-Cola is at it again. As soda sales decline in the United States and Europe, beverage companies look to emerging economies like China for growth. And, it... Read more

    The 15 January 2019 by   Dietdoctor
  • Jewellery for a Precious You

    Jewellery Precious

    Jewellery is always close to a woman’s heart. It completes her look and boost confidence. Considering the changing trends in jewellery fashion, it becomes... Read more

    The 15 January 2019 by   Dr.jenifer Sayyed
  • Rajshri Productions’ Next Is A Film On Friendship | Hum Chaar | Trailer

    Abhishek Dixit’s debut feature film Hum Chaar is a Bollywood film made under the banner of Rajshri’s film. Hum Chaar is written and directed by Abhishek Dixit. Read more

    The 15 January 2019 by   Themoviean
  • Saint Paul the First Hermit

    Saint Paul First Hermit

    Today is the feast day of Saint Paul the hermit. This is a sweet and delicate Oatmeal Bread topped with rolled oats and naturally sweetened with agave. Saint... Read more

    The 15 January 2019 by   Veronica46
  • Irupathiyonnaam Noottaandu | Teaser | Pranav Mohanlal | Arun Gopy

    Arun Gopy’s Irupathiyonnaam Noottaandu is an upcoming Malayalam action-drama feature film starring Pranav Mohanlal and Zaya David in the lead roles. Read more

    The 15 January 2019 by   Themoviean
  • A Year Of Body Positivity

    Year Body Positivity

    Last January, as I sat there on New Years eve all set to make the same old resolutions I've made year after year for as long as I can remember, I realised how... Read more

    The 15 January 2019 by   Sparklesandstretchmarks
  • Garden Bloggers Bloom Day – Jan 2019

    Garden Bloggers Bloom 2019

    Euphorbia rigidaWhen I went out to take the photos for this blog post I was surprised at how much was in flower dotted around the garden. Read more

    The 15 January 2019 by   Patientgardener