Bkoffman

LATEST ARTICLES ( 352 )

• Short an Sweet News: Less CLL (chronic Lymphocytic Leukemia) Cells in My Blood...

  Good news. The absolute number of my B cells where my cancer lives dropped by almost 1/5 in the last 3 months from 246 to 216 after slowly climbing over the las... Read more

  Posted on 17 July 2016 COMMUNITY, HEALTH

• The Patients' Perspective on the Changes in CLL (chronic Lymphocytic Leukemia)...

  If you recall, a month ago I was in Copenhagen for the European Hematology Association (EHA) meeting and I had the privilege to be asked to speak with a very... Read more

  Posted on 17 July 2016 COMMUNITY, HEALTH

• CLL Tribune: Our 4th Chronic Lymphocytic Leukemia Newsletter with Articles by CL...

  Last week we published the 4th edition of The CLL Tribune. We’re so grateful to the patients and physicians and others who share their experience and expertise... Read more

  Posted on 10 July 2016 COMMUNITY, HEALTH

• End of an Era

  

  A Mythical magical Mix of Creatures: A ChimeraToday I learned that my chimerism test in my peripheral blood was 100% host and 0% donor. Read more

  Posted on 08 July 2016 COMMUNITY, HEALTH

• Mixed Messages and the Sound of Distant Train Whistles

  "I swear that too great a lucidity is a disease, a true, full-fledged disease."NOTES from UNDERGROUNDBy Fyodor DostoevskySometimes the ability to see around... Read more

  Posted on 05 July 2016 COMMUNITY, HEALTH

• CLL Society Newsletter with Dr. Jones on Venetoclax, Dr. Jacobs on the TAPUR...

  I am happy to share that the Q2 2016 issue of The CLL Tribune has launched! You can read it here: http://www.cllsociety.org/newsletter/It is much hard work and... Read more

  Posted on 30 June 2016 COMMUNITY, HEALTH

• Dr. Jeff Sharman on Some Interesting Clinical Trials for CLL, an Important...

  This week in the Clinical Trials/The Basics section of the CLL Society website, we’ve posted an interview with Dr. Jeff Sharman where we talked about how... Read more

  Posted on 24 June 2016 COMMUNITY, HEALTH

• Dr, Bill Wierda on the Importance of Clinical Trials in CLL

  I’m home from the European Hematology Association Congress in Copenhagen. I received very positive feedback on my lecture and the preliminary data from our... Read more

  Posted on 19 June 2016 COMMUNITY, HEALTH

• Interview with Dr. Kipps on CLL(chronic Lymphocytic Leukemia) Research from ASH...

  Well, my bags are finally packed. Better be! I am at the airport ready to go to the European Hematology Association meeting in Copenhagen. Read more

  Posted on 07 June 2016 COMMUNITY, HEALTH

• Best Personalized Care™ in CLL (Chronic Lymphocytic Leukemia)

  I was asked to write one page about how our nonprofit CLL Society helped patients overcome friction points in their care. Here is what I came up with it.The... Read more

  Posted on 31 May 2016 COMMUNITY, HEALTH

• Patient Advocacy in CLL (chronic Lymphocytic Leukemia)

  Friends,This past weekend I was in Paris representing the US (and Canada) for the planning meeting for the CLL Advocacy Network (CLLAN) that is being organized... Read more

  Posted on 25 May 2016 COMMUNITY, HEALTH

• What About Duvelisib for CLL (chronic Lymphocytic Leukemia)?

  Friends,This week in the Beyond the Basics/Treatment section of our website, we’ve posted an article about another treatment under investigation called IPI-145... Read more

  Posted on 17 May 2016 COMMUNITY, HEALTH

• A Therapeutic Escape For Cancer Advocates

  

  Miraval, Arizona, home to the ESCAPE Conference August 14-17, 2016This is a super conference run by friends of mine from Bag It, a wonderful nonprofit, in an... Read more

  Posted on 15 May 2016 COMMUNITY, HEALTH

• Music Or at Leas t the Blues After a CLL (chronic Lymphocytic Leukemia) Diagnosis

  

  Friends,We are doing something entirely different- a feel good musical story of triumph after diagnosis and treatment.This week in the Living Well with... Read more

  Posted on 12 May 2016 COMMUNITY, HEALTH

• U.S. Rep. Mark DeSaulnier Shares That He Has CLL (chronic Lymphocytic Leukemia)

  

  Good for him.The rookie Democratic Congressman Mark DeSaulnier who represents the Bay area of Walnut Creek and Richmond (very near where my oldest daughter and... Read more

  Posted on 07 May 2016 COMMUNITY, HEALTH

• CC-122, a New IMID Or Immuno-modulator in Trials for CLL (chronic Lymphocytic...

  

  Stairs to the beach at Torrey Pines State ParkHi friends,This week in the Beyond the Basics/Treatment section of our website, we’ve posted an article about... Read more

  Posted on 03 May 2016 COMMUNITY, HEALTH

• Top 10 List for Lymphoma and an Important CLL Survey

  Dr. Leonard is a great teacher and this week we share his top 10 list of what we need to know about lymphoma on our nonprofit's website: http://cllsociety.org. Read more

  Posted on 20 April 2016 COMMUNITY, HEALTH

• What Does a CLL Patient and Advocate Have in Common with a Diabetes Or HIV Or...

  

  What do patients with HIV or aggressive autoimmune arthritis or inflammatory bowel disease or diabetes or cancer or mental illness or psoriasis have in common... Read more

  Posted on 18 April 2016 COMMUNITY, HEALTH

• Survey to Help Canadian CLL (chronic Lymphocytic Leukemia) Patients

  If you have CLL could you please read the below and consider taking a 10 minute survey to help patients in Canada.The Canadian regulatory system for the approva... Read more

  Posted on 15 April 2016 COMMUNITY, HEALTH

• Patient Survey, New CLL Support Groups, Life at the Beach, and Living Well with...

  Friends, It’s been a very busy year and this week I spent a few days away from my patients and my online and live support group efforts just walking, reading,... Read more

  Posted on 12 April 2016 COMMUNITY, HEALTH