Community Magazine

I Have Found the FAST FORWARD, but Where is the PAUSE Button

By Bkoffman
I have found the FAST FORWARD, but where is the PAUSE buttonUs with our guides and safari organizer in Kenya
I returned stateside at LAX late Monday after leaving Nairobi on Sunday. Our arranged transport didn't show. In the confusion, I lost my favorite sweatshirt.
The next day I had three conference calls scheduled related to CLL or patient and medical education, my IVIG infusion, and lab draws for my local clinic with 9 more tubes for special testing being done at Mayo.
My car told me I had a flat tire on the drive to the clinic- I didn't, but the pressure was a bit low. Then the same thing happened with the van.
Most importantly, my blood tests done on Tuesday morning showed a significant left shift, something brand new for me, prompting a call from my local hematologist, Dr. Sharma to see if I was acutely ill- I am not or at least not knowingly sick.
In a left shift, immature blood cells are released prematurely from the bone marrow into the blood stream. This is usually a response to an infection, but can be a sign of a secondary blood cancer.
Also in a potentially foreboding development, my absolute lymphocyte count jumped above normal for the first time in many many years. And my LDH, a chemical marker of active inflammation or tumor activity or worst, was above normal.
Something is clearly going on. But what is it?
I have to follow my own advice and will simply wait to see if it was simply an abnormal blip in response to the extraordinary stress of my recent travels and jet lagged status, or was it the beginning of some new trend. Lab work will be repeated at UCSD at the end of next week. Until then, I refuse to worry.
Next I got home to find a bill for almost $5,000 for my prior IVIG infusion, the same infusion at the same place (my own medical group's cancer center) at the same dose that I have been getting for nine years now. What's changed?  More hassles to deal with. I am sure it too will all work out. It's got to.
And it turns out that I have not been getting paid for my work at my family medicine clinic for a long time despite working more hours than I have in years. This I am told is due to a book keeping snafu. It also will all work out, sooner rather than later I hope.
I have never been paid at the nonprofit as we need all our cash for programming. Hopefully that too will change as our community continues to grow.
in a spare moment, I argued with Amazon but was eventually able to returned for a partial refund the brand new but defective Nikon camera bought specifically for the trip.
Next month the CLL Society is starting direct peer to peer counseling for hundreds of fellow patients monthly with over a dozen volunteers and everything has to be encrypted and HIPAA compliant.
In September, we are also jumpstarting and organizing several support and education groups all across the country.
The list of the things that need to be sorted or fixed and not worried about goes on and on and on.
I have found the FAST FORWARD, but where is the PAUSE button? I would love to be languishing in the afterglow of the safari, but it was not to be.
Life is still sweet even it is a bit too fast.
I have found the FAST FORWARD, but where is the PAUSE buttonCheetah Mom with Her Pups(lovely photos courtesy of our fellow traveler Chris-we have no time to sort our photos)SaveSaveIf you want a personal response, or just want to stay in touch, please email me at [email protected] I have no other way of contacting. Thanks. Stay strong. After all, we are all in this together. And please visit our website: http://cllsociety.org for the latest news and information.

You Might Also Like :

Back to Featured Articles on Logo Paperblog

These articles might interest you :

  • Big Food Giants Manipulate Public Health Policy in China

    Food Giants Manipulate Public Health Policy China

    Coca-Cola is at it again. As soda sales decline in the United States and Europe, beverage companies look to emerging economies like China for growth. And, it... Read more

    The 15 January 2019 by   Dietdoctor
    DIET & WEIGHT, HEALTH, HEALTHY LIVING, MEDICINE
  • Jewellery for a Precious You

    Jewellery Precious

    Jewellery is always close to a woman’s heart. It completes her look and boost confidence. Considering the changing trends in jewellery fashion, it becomes... Read more

    The 15 January 2019 by   Dr.jenifer Sayyed
    LIFESTYLE
  • Rajshri Productions’ Next Is A Film On Friendship | Hum Chaar | Trailer

    Abhishek Dixit’s debut feature film Hum Chaar is a Bollywood film made under the banner of Rajshri’s film. Hum Chaar is written and directed by Abhishek Dixit. Read more

    The 15 January 2019 by   Themoviean
    ENTERTAINMENT, MOVIES
  • Saint Paul the First Hermit

    Saint Paul First Hermit

    Today is the feast day of Saint Paul the hermit. This is a sweet and delicate Oatmeal Bread topped with rolled oats and naturally sweetened with agave. Saint... Read more

    The 15 January 2019 by   Veronica46
    FOOD & DRINK, RECIPES
  • Irupathiyonnaam Noottaandu | Teaser | Pranav Mohanlal | Arun Gopy

    Arun Gopy’s Irupathiyonnaam Noottaandu is an upcoming Malayalam action-drama feature film starring Pranav Mohanlal and Zaya David in the lead roles. Read more

    The 15 January 2019 by   Themoviean
    ENTERTAINMENT, MOVIES
  • A Year Of Body Positivity

    Year Body Positivity

    Last January, as I sat there on New Years eve all set to make the same old resolutions I've made year after year for as long as I can remember, I realised how... Read more

    The 15 January 2019 by   Sparklesandstretchmarks
    DIARIES, SELF EXPRESSION
  • Garden Bloggers Bloom Day – Jan 2019

    Garden Bloggers Bloom 2019

    Euphorbia rigidaWhen I went out to take the photos for this blog post I was surprised at how much was in flower dotted around the garden. Read more

    The 15 January 2019 by   Patientgardener
    GARDENING, HOME

Magazines