Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 352 )
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Free CLL Patient and Caregiver Educational Forums Nov. 4 at UCI, Irvine and...
Hi,We are happy to be partnering with LLS and UCI in Irvine, CA for a free patient and caregiver meeting on Nov.4 (See details at... Read more
Posted on 04 October 2017 COMMUNITY, HEALTH -
Please Read the Third 2017 Issue of The CLL Tribune
Welcome to the Third 2017 Issue of The CLL Tribune.ClicK here: http://cllsociety.org/quarter-3-2017-volume-3-issue-3/ to read the Front Page.We've Come a Long... Read more
Posted on 28 September 2017 COMMUNITY, HEALTH -
CLL Ireland: Dr. Munir on Combination Therapies in Chronic Lymphocytic Leukemia
I'm in Alaska this week with my daughter's family and just enjoyed a cold and blustery day glacier cruise. I'm finally feeling a bit better though I still have ... Read more
Posted on 27 September 2017 COMMUNITY, HEALTH -
iwCLL 2017: Professor Hillmen on MRD Negativity in CLL
One of the benefits of going to conferences, besides hearing about the latest data on CLL, is meeting up with good friends in the CLL world. Read more
Posted on 14 August 2017 COMMUNITY, HEALTH -
ASH 2016: Dr. Adrian Wiestner on Ibrutinib Failure in CLL
In my interview from ASH 2016 in San Diego, Dr. Adrian Wiestner of the National Institutes of Health talks about the patients who fail ibrutinib due to disease... Read more
Posted on 14 August 2017 COMMUNITY, HEALTH -
iwCLL 2017: Deb Sims Discusses Her Incredible CLL Journey to Stay Alive
Hi,After some rather heavy articles on complex medical topics, this week I have a more upbeat personal interview with my Ozzie friend, Deb Sims about her... Read more
Posted on 03 August 2017 COMMUNITY, HEALTH -
Ibrutinib, SNS-062, and CAR-NK for CLL (chronic Lymphocytic Leukemia)
Hi,It’s been a bit crazy, but I wanted to share that I have posted on our nonprofit’s website http://cllsociety.org an interview from ASH about the... Read more
Posted on 24 July 2017 COMMUNITY, HEALTH -
Nine Years of Blogging Since Transplant for CLL (chronic Lymphocytic Leukemia) o...
This picture, painted by son William, launched by blog and was originally painted as a way to remember me after I was gone. Now it just serves to reminds us of ... Read more
Posted on 06 July 2017 COMMUNITY, HEALTH -
CLL Tribune is Full of Articles from Patients and Expert on Chronic Lymphocytic...
Last week we published the latest issue of The CLL Tribune (http://www.cllsociety.org/newsletter/). We're so grateful to the patients and physicians who share... Read more
Posted on 05 July 2017 COMMUNITY, HEALTH -
ASH 2016: Which Patients With Chronic Lymphocytic Leukemia (CLL) Become Resistan...
This week I'm posting the final installment of my 3-part interview with Dr. Adrian Wiestner from the NIH where we discussed which CLL patients are more likely t... Read more
Posted on 28 June 2017 COMMUNITY, HEALTH -
Ibrutinib Failure as a Result of Progressive Chronic Lymphocytic Leukemia (CLL)...
This week I'm posting another interview that took place at ASH 2016 with Dr. Adrian Wiestner from the NIH where we discussed ibrutinib failure as a result of... Read more
Posted on 25 June 2017 COMMUNITY, HEALTH -
Monoclonal B-Cell Lymphocytosis: A Precursor to CLL (chronic Lymphocytic...
This week I'm posting on the CLL Society website an interview that took place at ASH 2016 with Dr. Neil Kay from the Mayo Clinic in Rochester, MN where we... Read more
Posted on 21 June 2017 COMMUNITY, HEALTH -
ASH 2016: Dr. Seymour on Combination Therapies for Chronic Lymphocytic Leukemia...
Combination therapies are the future in CLL. And combinations that include venetoclax are being actively researched.For good reasons. Read more
Posted on 10 June 2017 COMMUNITY, HEALTH -
ASH 2016: Dr. Anthony Mato on Real World Data on CLL (chronic Lymphocytic...
I've posted on CLLSociety.org an interview with Dr. Anthony Mato from U. Penn when we talked at ASH 2016 about the real-world research he has been doing patient... Read more
Posted on 03 June 2017 COMMUNITY, HEALTH -
More on Genetic Testing in CLL in A Facebook Live Event at 1 PM June 1
A genetic testing Facebook Live event this Thursday from ASCO with Dr. Jeffrey Jones similar to the one I did at iwCLL. Dr. Jones from Ohio State University (OS... Read more
Posted on 01 June 2017 COMMUNITY, HEALTH -
We Need Your Help
Friends and Supporters,We need your help.The nonprofit CLL Society has prepared a two-minute video that outlines our needs and asks for your donation to allow u... Read more
Posted on 30 May 2017 COMMUNITY, HEALTH -
5 Years Since I Started on Ibrutinib for My CLL (chronic Lymphocytic Leukemia) i...
May 5, 2017 marked 5 years since I swallowed my first 3 capsules of PCI-32765, now better known as ibrutinib or Imbruvica.I still take 3 battleship grey capsule... Read more
Posted on 21 May 2017 COMMUNITY, HEALTH -
More on Steroids and an Upcoming FaceBook Live This Saturday at 3:45PM EDT from...
Hi,I just posted the third and final segment of my 3 articles on steroids in CLL. This one is on the possible short term risks and on correlation versus... Read more
Posted on 11 May 2017 COMMUNITY, HEALTH -
Two Year Anniversary of the CLLSociety.org Website Celebrating with Our 7th...
This issue of The CLL Tribune (http://www.cllsociety.org/newsletter/) is our 7th quarterly newsletter and I am proud to say it marks two years since the CLL... Read more
Posted on 02 April 2017 COMMUNITY, HEALTH -
ASH 2016: Dr. Matt Davids of the Combination of TGR-1202 and Ibrutinib for...
This week, on the CLL Society website we are sharing a video interview with Dr. Matthew Davids from ASH 2016 where we discuss a clinical trial that combines... Read more
Posted on 28 March 2017 COMMUNITY, HEALTH