Its national Fibromyalgia Day and I wanted to introduce you to a friend of mine Steph who knows all too well how Fibromyalgia affects your life.
How Fibromyalgia affects my day to day life
Steph
I struggle with a lot of daily things, from getting up in a morning till I am actually in bed. I wake a lot in the night too, a lot of the time unable to move or even turn my self over so my oh has to help me out.
From the minute I finally get up out of bed I am stiff and in pain all day everyday.
Iv been on that amount of painkillers/nerve tablets and I am still having to see how they suit me.
I find it very hard to look after 2 young children, one being only 10 months old, as you can imagine its hard work with a baby as it is, but with constant chronic pain in every part of your body, it only makes life harder.
At times I felt like giving up.
My left hand is so weak I cannot open simply things such as a bottle of pop, lift my daughter at times and even walk up the stairs as my knee gives way.
Standing for a short amount of time is unbearable too.
I try not to go out the house if I don’t really have to and if I do I try to just walk short distances or if I walk to town I am left in more agony than normal.
I cant walk very far without having to stop for a rest because my back feels as if it is going to snap in half .
If it wasn’t for my partner I don’t know what I would do. Well I do, I would not drink or not eat as opening things again with my left hand I cant do. I wouldn’t be able to turn or get out of bed most days and would not be able to look after our youngest child, I really struggle to do so.
The thing with Fibro, we look fine, but it’s the insides that hurt.
Many people have said to me o u don’t look like someone with something like that.
But people shouldn’t be so quick to judge the outside.
This is what gets me I try and do normal stuff, I have to cause of my family, but at the end of each day I am normally in tears because of the pain throughout the whole day and I feel like giving up.
Because I know this is for life, its so depressing. I just wish I was normal and able to enjoy life as much as possible without thinking, ‘I cant go there cause I hurt more.
I am 23 years old and feel like 90.
As well as Fibromyalgia, I also have bulging back disks which causes a lot of burning and nerve pain across my back down into my left leg, and early onset of hyperthyroidism. Also my left knee is wearing away.
Many people with Fibro don’t suffer with just that, other things are associated with it.
From having pain for 5 years and more I only got diagnosed last November, so its all still quite new to me, and all the new things that keep popping up wrong with me too I think it will never end half the time.
I am still under the Rheumatologist at the hospital and I see my doctor regularly.
The mums on my Facebook group wanted to show their support and did so by drawing butterflies on their wrists and some mums even had tattoos of butterflies that they wanted to share.
