Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 357 )
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CC-122, a New IMID Or Immuno-modulator in Trials for CLL (chronic Lymphocytic...
Stairs to the beach at Torrey Pines State ParkHi friends,This week in the Beyond the Basics/Treatment section of our website, we’ve posted an article about... Read more
Posted on 03 May 2016 COMMUNITY, HEALTH -
Top 10 List for Lymphoma and an Important CLL Survey
Dr. Leonard is a great teacher and this week we share his top 10 list of what we need to know about lymphoma on our nonprofit's website: http://cllsociety.org. Read more
Posted on 20 April 2016 COMMUNITY, HEALTH -
What Does a CLL Patient and Advocate Have in Common with a Diabetes Or HIV Or...
What do patients with HIV or aggressive autoimmune arthritis or inflammatory bowel disease or diabetes or cancer or mental illness or psoriasis have in common... Read more
Posted on 18 April 2016 COMMUNITY, HEALTH -
Survey to Help Canadian CLL (chronic Lymphocytic Leukemia) Patients
If you have CLL could you please read the below and consider taking a 10 minute survey to help patients in Canada.The Canadian regulatory system for the approva... Read more
Posted on 15 April 2016 COMMUNITY, HEALTH -
Patient Survey, New CLL Support Groups, Life at the Beach, and Living Well with...
Friends, It’s been a very busy year and this week I spent a few days away from my patients and my online and live support group efforts just walking, reading,... Read more
Posted on 12 April 2016 COMMUNITY, HEALTH -
Busy Few Weeks and a Therefore Rather Ironic Article on Fatigue in CLL (chronic...
Hi Friends, It’s been a busy few weeks.Last week was exciting as we marked the first year since we launched our website, published our first 2016 issue of The... Read more
Posted on 04 April 2016 COMMUNITY, HEALTH -
Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options:...
This Saturday in Manhattan Beach, Lymphoma Research Foundation (LRF) is putting on a patient education meeting.Try to make it.Dr. Herb Eradat out of UCLA is... Read more
Posted on 28 March 2016 COMMUNITY, HEALTH -
Venetoclax in Refractory CLL (chronic Lymphocytic Leukemia) Patients with...
Friends,This week in the 2015 Conference Coverage section of the CLLSociety.org we have posted my final interview with Dr. Stephan Stilgenbauer while we were... Read more
Posted on 23 March 2016 COMMUNITY, HEALTH -
ASH 2015: Dr. John M Pagel on Idelalisib as Frontline Therapy in CLL (chronic...
We have just learned of the good news of the broad FDA approval in the USA of ibrutinib in the frontline setting for CLL. This step forward in CLL therapy only... Read more
Posted on 06 March 2016 COMMUNITY, HEALTH -
This Changes Everything: Approval of Imbruvica (ibrutinib) for Frontline Use in...
This is big news in stark contrast to the preliminary NICE recommendation to note approve ibrutininb for relapsed and refractory patients in the UK despite... Read more
Posted on 04 March 2016 COMMUNITY, HEALTH -
ASH 2015: Dr. Stephan Stilgenbauer on Clonal Evolution in CLL (chronic...
This week in the 2015 Conference Coverage section of the CLL Society website, we have posted an interview with Dr. Stephan Stilgenbauer as he discusses clonal... Read more
Posted on 01 March 2016 COMMUNITY, HEALTH -
Traveling Blues Related to CLL (chronic Lymphocytic Leukemia)
Stairs to the beach at Torrey Pines State Nature ReserveFebruary may be an extra day longer this year, but that still doesn't justify my travel schedule. Read more
Posted on 28 February 2016 COMMUNITY, HEALTH -
From One CLL Trial to Another for An Aggressive CLL (chronic Lymphocytic...
Friends,This week in the Clinical Trials section of the CLL Society website, we have posted an article authored by Adam Irgom. Read more
Posted on 23 February 2016 COMMUNITY, HEALTH -
HealtheVoices: A Blogging and Social Media Patient Advocates' Summit This April...
HealtheVoices 2016 is a great idea and a super opportunity for anyone wanting to share best practices and needing to learn that we are not alone in our struggle... Read more
Posted on 17 February 2016 COMMUNITY, HEALTH -
Dr. Tam on Venetoclax (ABT-199) for Treating CLL (chronic Lymphocytic Leukemia)
Friends,This week in the Conference Coverage section of the CLL Society website, we have posted an interview from the 2015 iwCLL meeting with Dr. Constantine... Read more
Posted on 16 February 2016 COMMUNITY, HEALTH -
Good News from OSU with Lab Results Back to Normal Including All My Liver Tests...
As some of my readers may know, my liver tests were slightly elevated and then climbed a little higher on a second blood test 3 weeks later for no good reason. Read more
Posted on 10 February 2016 COMMUNITY, HEALTH -
Richter's Transformation and on the Road Again
Friends,This week in the Beyond the Basics section of the CLL Society website, we have posted an interview from ASH 2015 with Dr. Januario Castro, although... Read more
Posted on 08 February 2016 COMMUNITY, HEALTH -
World Cancer Day and The Role of CLL (Chronic Lymphocytic Leukemia)
Friends,February 4th is World Cancer Day and there is so much we can do.Visit their website: http://www.worldcancerday.org and learn the many ways that we can... Read more
Posted on 04 February 2016 COMMUNITY, HEALTH -
Dr. Kanti Rai on the Future of CLL (chronic Lymphocytic Leukemia) Therapy
Friends,This week on the CLL Society website we have posted an interview with the great Dr. Kanti Rai when he sat down to chat with me during a break from the... Read more
Posted on 03 February 2016 COMMUNITY, HEALTH -
It's Always Something: Latest Lab Results Bring the Unexpected in My CLL (chroni...
Every seven weeks or so, I go to the cancer center associated with St. Jude in Fullerton, CA for my IVIG (intravenous immune globulins) infusion to keep my... Read more
Posted on 31 December 2015 COMMUNITY, HEALTH
