Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 352 )
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Reflections on Year of Both Great Progress and Great Sadness in the CLL World
Happy New Year.This year we lost 3 members of our local Orange County CLL Society support group, and I lost other 3 other dear CLL and CAR-T friends that I met... Read more
Posted on 29 December 2018 COMMUNITY, HEALTH -
Closing One Door, Opening Another.
December 10, 2018 was a monumental day for me. A huge transition.After 38 years of caring for generations of patients as their family doctor, I retired today... Read more
Posted on 13 December 2018 COMMUNITY, HEALTH -
Off to ASH 2018
Swamped so this will be quick, but I haven't forgotten the blog.I am off to ASH 2018 where we are busy from 7 AM to 10 PM most days. Read more
Posted on 29 November 2018 COMMUNITY, HEALTH -
ASH 2017: Dr. Thomas Kipps on the ROR1 Antibody, Cirmtuzumab
At ASH 2017 held in December in Atlanta, Dr. Thomas Kipps from the Moore Cancer Center at UCSD in San Diego, CA talked about an exciting new target for very... Read more
Posted on 19 August 2018 COMMUNITY, HEALTH -
ASH 2017: Dr. Adrian Wiestner on Resistance Mechanism in CLL (chronic Lymphocyti...
I had the opportunity to interview Dr. Adrian Wiestner from the National Institutes of Health at ASH 2017 in Atlanta GA about his and other researchers work on... Read more
Posted on 11 August 2018 COMMUNITY, HEALTH -
He Did It
Hi,Stan Kurtz and his team, with help from so many of you, Did it. He swam the Catalina channel and raised his goal of over $25.000 for the CLL Society! Thanks... Read more
Posted on 06 August 2018 COMMUNITY, HEALTH -
10 Years Ago Today I Received My Transplant for My CLL (chronic Lymphocytic...
July 1, 2008, Canada Day, was my first Day Zero- my first shot at a cure when after conditioning chemo-immunotherapy of FCR, I received my hematopoietic stem... Read more
Posted on 02 July 2018 COMMUNITY, HEALTH -
I've Go to Admit It's Getting Better: More Good News About My CLL (chronic...
Most of my blog posts can be followed here.The full story of my CAR-T therapy, the incredible rollercoaster and the amazing results can be found there I have... Read more
Posted on 22 May 2018 COMMUNITY, HEALTH -
Get My Car-t Cells Tomorrow for Mycll
Patty and I have been enjoying Seattle. We’ve been here for 3 weeks prepping for the JCAR14 trial at SCCA/Hutch. Tomorrow is my big day- I get the CAR-T cells. Read more
Posted on 22 March 2018 COMMUNITY, HEALTH -
Goldilocks and the CAR-T Cells
I had planned to write more often, but long hospital days, followed by long naps and long walks most days have precluded me doing much more than remembering my... Read more
Posted on 18 March 2018 COMMUNITY, HEALTH -
3/6/2018 Brian's Apheresis at SCCA for CAR-Ts to Treat CLL
Patty reporting from Seattle Cancer Care Alliance March 6, 2018: Apheresis! Using a sophisticated centrifuge, Brian’s T-cells are being spun off and will be... Read more
Posted on 06 March 2018 COMMUNITY, HEALTH -
Me and My CAR-T- Part 1 on Why I Have Moved to Seattle for 2 Months to Treat My...
First things first.Thank you.I have been overwhelmed by the support and prayers I have received in the past few days by email, comments on the website,... Read more
Posted on 01 March 2018 COMMUNITY, HEALTH -
Starting CAR-T Therapy For My CLL (chronic Lymphocytic Leukemia)
Friends and CLL Society supporters: This isn't easy. After consulting with my wife, my family, my closest friends and key supporters of the CLL Society, I... Read more
Posted on 24 February 2018 COMMUNITY, HEALTH -
Dr. Furman on The Diminishing Role of FCR in CLL (chronic Lymphocytic Leukemia)
As we're getting ready to head to ASH this week, we wanted to post in response to a query that was posted originally on the CLLSLL io group forum. Dr. Read more
Posted on 07 December 2017 COMMUNITY, HEALTH -
Giving Tuesday: Please Help the CLL Society Fulfill Its Mission of Helping...
Help the non profit CLL Society on Giving Tuesday at https://cllsociety.org/donate-to-cll-society/.At a recent CLL Society Patient Educational Forum, patients... Read more
Posted on 29 November 2017 COMMUNITY, HEALTH -
Patient Survey, Free Expert Access for CLL (chronic Lymphocytic Leukemia)...
Hope for my American friends it was a great Thanksgiving. Mine was vegan and I still managed to overeat.If you haven’t already completed our patient survey, I... Read more
Posted on 25 November 2017 COMMUNITY, HEALTH -
New Shingles Vaccine and What It Means for CLL Patients
If you haven't had time to participate in our 2017 CLL Patient Survey, please consider doing it today. You can participate online or request a paper survey. Fin... Read more
Posted on 09 November 2017 COMMUNITY, HEALTH -
Survey for Patients with CLL / SLL (chronic Lymphocytic Leukemia)
Participate in an Important Survey for Patients with CLL/SLLHave you been diagnosed with chronic lymphocytic leukemia or small lymphocytic lymphoma?Do you resid... Read more
Posted on 01 November 2017 COMMUNITY, HEALTH -
Post ASH CLL Society Patient and Caregiver Educational Forums
ASH is the most important hematology conference and this year there is sure to be clinically relevant news for those of us with CLL. To learn the latest (and th... Read more
Posted on 24 October 2017 COMMUNITY, HEALTH -
CLL Society, LLS and the Cleveland Clinic Present a Free Patient and Caregiver...
The CLL Society, LLS and the Cleveland Clinic are hosting a Patient and Caregiver Forum on Nov. 11. It is going to be a super educational experience with CLL... Read more
Posted on 18 October 2017 COMMUNITY, HEALTH