Bkoffman

LATEST ARTICLES ( 357 )

• Why Patients Need to Be Heard At Medical Congresses: The Patient's Perspective o...

  Here is the hope that this season of miracles offered up its miracles to those of us in need.And if the time is not right for miracles, then let's at least do... Read more

  Posted on 03 January 2015 COMMUNITY, HEALTH

• Holding Court: Clive James Writes About the End of Life and CLL (chronic...

  Clive James has CLL and is not well, not well in many ways. I want to meet him or at least connect by mail or phone. Any ideas? Read more

  Posted on 26 December 2014 COMMUNITY, HEALTH

• Last Chance for the CLL (chronic Lymphocytic Leukemia) Survey and the News...

  We are taking down the survey at midnight tonight Pacific Time, so if you haven't completed it, please let us know what will be important to you in a CLL websit... Read more

  Posted on 19 December 2014 COMMUNITY, HEALTH

• ASH 2014: Interview with Dr. Susan O'Brien and Dr. Bruce Cheson on CLL (chronic...

  

  There is much to report from ASH 2014, and this sweet interview from Medscape offers a short synopsis of some of the highlights. Read more

  Posted on 18 December 2014 COMMUNITY, HEALTH

• ESH 2014: Prof. Stephan Stilgenbauer Reviews Predictive and Prognostic Markers i...

  

  I was asked to present the patient's perspective in CLL at a satellite symposium to the annual congress of the Hellenic Society of Hematology held in... Read more

  Posted on 16 December 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. O'Brien Discusses Improved Trial Designs and the Role of...

  I am back from ASH 2014 with some informative video interviews from Drs. Hillmen, Byrd, Burger, Wiestner, Kipps. Sharman, Roberts, Pagel, and Kay. Read more

  Posted on 13 December 2014 COMMUNITY, HEALTH

• Why Patients Need to Be Heard At Medical Congresses on Not Just CLL (chronic...

  I was asked by friends to help with a campaign to ensure that the voice of informed patients be heard more loudly, more clearly and more often at large medical... Read more

  Posted on 04 December 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Susan O'Brien Outlines Open Trials of Novel Agents and Equipoise...

  In the third part of my interview at ASCO 2014, Dr. O'Brien points out the advantages of being in a clinical trial, including the real financial advantages of... Read more

  Posted on 04 December 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Susan O'Brien Speculates on Combinations with Ibrutinib to Get a...

  In the second part of my audio interview, Dr. O'Brien of MD Anderson today and next year at UCI gives her opinion on one of my favorite topics, what... Read more

  Posted on 03 December 2014 COMMUNITY, HEALTH

• Good News from OSU About My CLL ( Chronic Lymphocytic Leukemia)

  It is no fun to travel on Thanksgiving weekend across the country to OSU, spending hours in busy airports full of long lines of irritable flyers, but I am know... Read more

  Posted on 02 December 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Susan O'Brien Reviews the 3 Years Follow-up Data on Ibrutinib in...

  If you can handle more hisses and pops on an audio recording, you will get to hear some pretty exciting news from Dr. Susan O' Brien who incidentally is... Read more

  Posted on 30 November 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Sharman Reviews the Results and Implication of a Single Agent...

  Another audio interview from ASCO 2014, this time with the ubiquitous Dr. Jeff Sharman, who with his work heading up a large national CLL/NHL research group, ha... Read more

  Posted on 29 November 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Byrd: Ibrutinib in the Real World of CLL (chronic Lymphocytic...

  In this short second half of my interview from the final minutes of ASCO 2014, Dr. Byrd, my clinical trial doctor at OSU, discusses some of the potential... Read more

  Posted on 28 November 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Byrd: What We Could Only Learn from a CLL Phase 3 Trial About...

  On the very last day of ASCO 2014 at the very last presentation, Dr. Byrd, my doctor out of Ohio State (OSU), shares with us what you could only find out from... Read more

  Posted on 12 November 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Farooqui on Trials at the NIH, ABT-199, and Issues of Long Term...

  In my last video interview from ASCO 2014 (several audio only interviews to come), with help from my friends at Patient Power, I interviewed Dr. Read more

  Posted on 09 November 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Kipps on ABT-199 and More on CLL (chronic Lymphocytic Leukemia):...

  

  More mural work from my son, Ben KoffmanIn this final segment of my three part interview from ASCO 2014, my doctor, Dr. Kipps out of the Moore Cancer Center at... Read more

  Posted on 19 October 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Furman Gives Us Perspective on Resistance with Ibrutinib in CLL...

  

  More of My Son, Ben's Mural WorkASCO 2014 was only a few months ago, but happily the CLL world is a fast moving place.Since this video interview with Dr. Read more

  Posted on 27 September 2014 COMMUNITY, HEALTH

• It's Been Nine Years Since My Diagnosis of CLL (Chronic Lymphocytic Leukemia)

  

  It's been nine years since my diagnosis of CLL and am so happy to be alive and arguably in better health that I was when I received the life changing news in... Read more

  Posted on 26 September 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Kipps Discusses ROR1 and Information About a New ROR1 Monoclonal...

  

  Mural Detail by my son Benjamin KoffmanI am just back from a very exciting AACR (American Association for Cancer Research) Hematologic Malignancies Conference... Read more

  Posted on 24 September 2014 COMMUNITY, HEALTH

• Personal Good News on the CLL (chronic Lymphocytic Leukemia) Front at OSU

  

  Selfie with Roy Lichtenstein's wonderful sculpture at the Columbus Ohio Airport Perfect weather in Columbus, Ohio and a lovely walk in the woods with OSU friend... Read more

  Posted on 15 September 2014 COMMUNITY, HEALTH