Bkoffman
MY BLOGS
-
BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 352 )
-
ASCO 2014: Dr. O'Brien Discusses Improved Trial Designs and the Role of...
I am back from ASH 2014 with some informative video interviews from Drs. Hillmen, Byrd, Burger, Wiestner, Kipps. Sharman, Roberts, Pagel, and Kay. Read more
Posted on 13 December 2014 COMMUNITY, HEALTH -
Why Patients Need to Be Heard At Medical Congresses on Not Just CLL (chronic...
I was asked by friends to help with a campaign to ensure that the voice of informed patients be heard more loudly, more clearly and more often at large medical... Read more
Posted on 04 December 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Susan O'Brien Outlines Open Trials of Novel Agents and Equipoise...
In the third part of my interview at ASCO 2014, Dr. O'Brien points out the advantages of being in a clinical trial, including the real financial advantages of... Read more
Posted on 04 December 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Susan O'Brien Speculates on Combinations with Ibrutinib to Get a...
In the second part of my audio interview, Dr. O'Brien of MD Anderson today and next year at UCI gives her opinion on one of my favorite topics, what... Read more
Posted on 03 December 2014 COMMUNITY, HEALTH -
Good News from OSU About My CLL ( Chronic Lymphocytic Leukemia)
It is no fun to travel on Thanksgiving weekend across the country to OSU, spending hours in busy airports full of long lines of irritable flyers, but I am know... Read more
Posted on 02 December 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Susan O'Brien Reviews the 3 Years Follow-up Data on Ibrutinib in...
If you can handle more hisses and pops on an audio recording, you will get to hear some pretty exciting news from Dr. Susan O' Brien who incidentally is... Read more
Posted on 30 November 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Sharman Reviews the Results and Implication of a Single Agent...
Another audio interview from ASCO 2014, this time with the ubiquitous Dr. Jeff Sharman, who with his work heading up a large national CLL/NHL research group, ha... Read more
Posted on 29 November 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Byrd: Ibrutinib in the Real World of CLL (chronic Lymphocytic...
In this short second half of my interview from the final minutes of ASCO 2014, Dr. Byrd, my clinical trial doctor at OSU, discusses some of the potential... Read more
Posted on 28 November 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Byrd: What We Could Only Learn from a CLL Phase 3 Trial About...
On the very last day of ASCO 2014 at the very last presentation, Dr. Byrd, my doctor out of Ohio State (OSU), shares with us what you could only find out from... Read more
Posted on 12 November 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Farooqui on Trials at the NIH, ABT-199, and Issues of Long Term...
In my last video interview from ASCO 2014 (several audio only interviews to come), with help from my friends at Patient Power, I interviewed Dr. Read more
Posted on 09 November 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Kipps on ABT-199 and More on CLL (chronic Lymphocytic Leukemia):...
More mural work from my son, Ben KoffmanIn this final segment of my three part interview from ASCO 2014, my doctor, Dr. Kipps out of the Moore Cancer Center at... Read more
Posted on 19 October 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Furman Gives Us Perspective on Resistance with Ibrutinib in CLL...
More of My Son, Ben's Mural WorkASCO 2014 was only a few months ago, but happily the CLL world is a fast moving place.Since this video interview with Dr. Read more
Posted on 27 September 2014 COMMUNITY, HEALTH -
It's Been Nine Years Since My Diagnosis of CLL (Chronic Lymphocytic Leukemia)
It's been nine years since my diagnosis of CLL and am so happy to be alive and arguably in better health that I was when I received the life changing news in... Read more
Posted on 26 September 2014 COMMUNITY, HEALTH -
ASCO 2014: Dr. Kipps Discusses ROR1 and Information About a New ROR1 Monoclonal...
Mural Detail by my son Benjamin KoffmanI am just back from a very exciting AACR (American Association for Cancer Research) Hematologic Malignancies Conference... Read more
Posted on 24 September 2014 COMMUNITY, HEALTH -
Personal Good News on the CLL (chronic Lymphocytic Leukemia) Front at OSU
Selfie with Roy Lichtenstein's wonderful sculpture at the Columbus Ohio Airport Perfect weather in Columbus, Ohio and a lovely walk in the woods with OSU friend... Read more
Posted on 15 September 2014 COMMUNITY, HEALTH -
Dr. Byrd: "We Are at an Incredibly Exciting Time for Patients and Their...
Cake of CureOK team, we have taken the first giant step in this moon shot. We've safely landed in a new world of disease control with no chemo. Now get us... Read more
Posted on 10 September 2014 COMMUNITY, HEALTH -
Want to Avoid Chemotherapy Or Taking an Expensive Medication Forever for Your CL...
METHYLPREDNISOLONEI and many others have railed against chemotherapy for our CLL. It may give us a long remission, or not. Your mileage will vary and those of u... Read more
Posted on 06 September 2014 COMMUNITY, HEALTH -
Forbes Says: "With So Many Terrific New Drugs For Chronic Lymphocytic Leukemia...
Hydra (the mythical monster that grows two heads when you cut off one)Elaine Schattner wrote a provocative and helpful editorial in Forbes: With So Many Terrifi... Read more
Posted on 01 September 2014 COMMUNITY, HEALTH -
Approval of Imbruvica Frontline for 17p Deleted CLL (Chronic Lymphocytic...
It's old news (July 28, 2014), but worthy of some reflection that ibrutinib ( PCI-32765 or Imbruvica) was approved frontline in CLL for those of unfortunate... Read more
Posted on 25 August 2014 COMMUNITY, HEALTH -
The Death of Robin Williams: A Failure of Imagination and What It Means to...
The death of Robin Williams casts a long pall over millions of us, myself included.How does the amazing and uplifting humor such as produced by Robin Williams'... Read more
Posted on 17 August 2014 COMMUNITY, HEALTH