There are lots of awareness days and weeks for many worthy causes however this one stands out.
I have M.E.
Or to give it its full name myalgic encephalomyelitis or its hip name of Chronic Fatigue Syndrome. It’s much more than just fatigue.
I am one of the 250,000 people in the UK who need a bit of help but don’t have a big “disabled” sticker on them. We don’t like to use sticks or wheelchairs. We want to be better. We want to be the way we were.
So if it’s not tiredness, what is it. The Olympic sport sleeping ability loses its fun after the third day of only being awake for an hour and not being able to do more than go to the toilet. There’s also the
Brain fog
Memory loss
Muscle pain
Joint pain
Headaches
Swollen glands
Earache
Sore throat
Diarrhoea
Clumsiness
Insomnia
Dizziness
Mood swings
Having to live with some of these no wonder I can be grouchy! These are hidden symptoms and most of the time we look OK. The best way of describing life is by “but you don’t look sick” and their spoon theory.
With ME awareness month, please remember we want to still be part of life, it’s just our body sucks most days. Keep us in mind. Drop your friend an email. Let them know you are still there.
