Basically there is only one thing standing in the way of finding a cure for Choroideremia: money, or better the lack of it.
EJ Scott, boyfriend of Deborah Ann Woll, has set his mind to raise funds for the Choroideremia Research Fundation with an extraordinary athletic endeavor: EJ is planning to run 12 marathons in 12 states in 2012. To protect his eyes from the damaging sun he will run the marathons blindfolded with the aid of his cousins who will guide him. He hopes to raise $12,000 per marathon.
Choroideremia is a rare inherited disorder that causes progressive loss of vision and leads to total blindness. At this time, there is no treatment or cure for this disease.
EJ has been busy promoting his fundraiser with an appearance on the Dr. Drew Show and a video on AOL.
EJ will kick off with the Arizona Rock ‘N’ Roll marathon on Sunday January 15th which will start from Downtown Phoenix.
You can follow EJ on Facebook and Twitter.
Support EJ and donate directly and safely to the Choroideremia Research Foundation by credit card using the PayPal button here below. Donations are tax deductible for US residents.
This PayPal button was provided to the Vault by Cory MacDonald, Executive Director of the Choroideremia Research Foundation.
