TV & Video Magazine

12 MARATHONS in 12 CITIES in 2012 for the Choroideremia Research Foundation

Posted on the 29 July 2011 by Thevault @The_Vault
12 MARATHONS in 12 CITIES in 2012 for the Choroideremia Research Foundation

Deborah and EJ at the True Blood s4 premiere

EJ Scott, the partner of True Blood actress Deborah Ann Woll, has Choroideremia. Choroideremia (CHM) is a rare inherited disorder that causes progressive loss of vision and leads to total blindness. At this time, there is no treatment or cure for this disease. Doctors working on a treatment say they are close but need only a couple of million dollars to make a real difference.

EJ is tireless in his efforts to raise funds for the Choroideremia Research Foundation and raise awareness for the disease. Last year EJ ran the Chicago marathon blindfolded because his eyes are very light sensitive.

In 2012 he will take fundraising to a whole new level: EJ will run 12 marathons in 12 cities!

 

This is EJ’s story:

As you may or may not know I have an eye disease called CHOROIDEREMIA (CHM) which is slowly causing me to go blind. My 6 year old nephew and brother also have this disease and my mother, sister and aunt are all carriers. (my grandfather also had the disease and was blind from it).

Since I found out in 2003 I have been trying to raise awareness and money for a treatment. Through the CHOROIDEREMIA RESEARCH FOUNDATION (CRF).

Last year I ran 2 half marathons and 1 full marathon in Chicago, all blindfolded. I was fortunate to get some local television and print publicity from it and I’m hoping for a lot more from this.

I also raised $14,000 losing 70lbs. All for the CRF.

Starting January 2012 I will be running one marathon a month in a different city each time. All Blindfolded. The goal is to raise an average of $12,000 per marathon ($144,000 all together by the end of 2012/ beginning of 2013.) I am running blindfolded because I am extremely sunlight sensitive and the sun would be very difficult and dangerous on my eyes for long amounts of time.

The first Marathon in January 2012 will be in Arizona!!! I’m already signed up.  I am NOT a runner. This stuff is very new and alien to me, so it will be a very big challenge. I’ll need all the support I can get.

Thanks so much everybody.

 

Here at The Vault we will continue our support for EJ and the Choroideremia Research Foundation. Today we transferred the first donation of $760, raised with an online auction of a portrait signed by Deborah, into EJ’s 12 MARATHONS in 12 CITIES Fund of the CRF and we have some great activities lined up for the future.

 

How you can support EJ and the battle against Choroideremia

You can donate by check or wire transfer, the required information can be found on The Choroideremia Research Foundation website.

Or donate directly and safely to the Choroideremia Research Foundation by credit card using the PayPal button here below. Donations are tax deductible for US residents.


This PayPal button was provided to the Vault by Cory MacDonald, Executive Director of the Choroideremia Research Foundation.

12 MARATHONS in 12 CITIES in 2012 for the Choroideremia Research Foundation

EJ during his last marathon


You Might Also Like :

Back to Featured Articles on Logo Paperblog

These articles might interest you :

  • Cottages

    Cottages

    Can you picture the scene? The cottage nestles below a mountain. Honeysuckle climbs the front wall and the name of the cottage mirrors the flower. Read more

    The 19 September 2018 by   Ashleylister
    BOOKS, CREATIVITY, CULTURE, SELF EXPRESSION
  • Happy Anniversary! Seven Years of Yoga for Healthy Aging

    Happy Anniversary! Seven Years Yoga Healthy Aging

    by NinaBy Wayne Thiebaud*Today’s our seventh anniversary! And when this time of year comes around, I can’t help but reflect on everything that happened here... Read more

    The 19 September 2018 by   Ninazolotow
    FITNESS, HEALTH, HEALTHY LIVING
  • Kotte Kadubu: a Symbol of Tradition Wrapped in Moulds of Faith

    Kotte Kadubu: Symbol Tradition Wrapped Moulds Faith

    Having celebrated Ganesh Chathurthi last week with all the religious fervour, this post is a look at one of the traditions followed each year on the day of the... Read more

    The 19 September 2018 by   Rashmi Gopal Rao
    DESTINATIONS, TRAVEL
  • Kotte Kadubu: a Symbol of Tradition Wrapped in Moulds of Faith

    Kotte Kadubu: Symbol Tradition Wrapped Moulds Faith

    Having celebrated Ganesh Chathurthi last week with all the religious fervour, this post is a look at one of the traditions followed each year on the day of the... Read more

    The 19 September 2018 by   Rashmi Gopal Rao
    TRAVEL
  • Mintd Box + Oskia London

    Mintd Oskia London

    What happens when a luxury beauty box joins forces with a very famous skincare brand? This month's box is what! This September, Mintd Box have collaborated... Read more

    The 19 September 2018 by   Kellilash
    HAIR & BEAUTY, LIFESTYLE
  • North American T-6D Texan/Harvard

    North American T-6D Texan/Harvard

    @ Madras, OR August 2015 First flown in 1935, more than 15,000 of these iconic warbirds were produced and served in air forces around the world as late as 1995. Read more

    The 19 September 2018 by   Htam
    PHOTOGRAPHY, SOCIETY
  • The 2-week Keto Challenge: “I’m Amazed at How Satisfied I Feel”

    2-week Keto Challenge: “I’m Amazed Satisfied Feel”

    Over people have signed up for our free two-week keto low-carb challenge. You'll get free guidance, meal plans, recipes, shopping lists and troubleshooting... Read more

    The 19 September 2018 by   Dietdoctor
    DIET & WEIGHT, HEALTH, HEALTHY LIVING, MEDICINE

Paperblog Hot Topics

Magazine