Diaries Magazine

Something's Up

By Babyjandbean
Well, kind of. It seems to be getting better, but anyway...
For the last two weeks, Bean couldn't get enough outside play. He mastered walking up and down the sidewalk and did it over. And over. And over. His walking has really taken off outside because he doesn't like his hands to touch the concrete or grass in our yard or the mulch at the playground. He has enjoyed being outside so much that he was actually throwing tantrums when we came inside. This is a new thing for him but we were actually excited to see because it's totally developmentally appropriate!
Something's Up
That came to a screeching halt this past Wednesday. Since then, when we go outside, he plops to the ground and refuses to walk or goes to the door and fusses to go inside.
Something's Up
At first, I thought it was because he was still tired from his doctor's appointment on Tuesday. Then, I realized that his feet must have grown overnight and his shoes were too small so I thought that was it. Nope. When we went inside, he walked just fine in his shoes. What I eventually realized was that it was windier than usual and there were guys working next door with power tools. So, I think I figured out that it's a sensory/hypersensitive hearing thing that is common for people with Williams syndrome. I'm noticing this more and more and am actually whisper/singing to him at meals because the noise seems to bother him then, too and he eats really well when I whisper to him. Thursday was bad, too but he did much better today when his occupational therapist this afternoon and his daddy this evening. 
Baby J, on the other hand, has been enjoying every second he can get outside. Other than the playground, his favorite activities are drawing with sidewalk chalk and bubbles.
Something's Up
In other news, Bean had his appointment with the developmental ped on Thursday. It went well - we didn't really learn anything new but it I really liked the doctor and she related well to Bean. She agreed with everyone else's assessment that he is functioning at about the age of 1 year old with the exception of speech which is more profoundly delayed. The appointment was long but he had fun playing with the various toys and showing off his party tricks. He did get a bit overstimulated and did some rocking and head banging. The doctor felt pretty confident that it was a sensory/regulation issue and I'm inclined to agree because he settles right down if I put the loaner compression vest on. Oh! And speaking of the compression vest, I got word today that the cost should be covered by incurance and medical assistance. I am so excited for him to get his own vest because it has made a HUGE difference at meals - Hooray!
I haven't heard back yet from Bean's endo yet on his labs from Tuesday but the developmental ped looked up the results in the hospital system. She told me that his calcium was in normal range (AWESOME!) but that she would leave the vitamin D level up to the endo to intrepret. I took that to mean that he is vitamin D deficient - which doesn't surprise me since he's been dairy free since birth. The developmental ped also voiced her concern about his blood pressure. I called the endo today to request the results but haven't heard back yet - I'm guessing that one of the results is still pending. As for the blood pressure, we're following up on that, too.
We don't have a whole lot of plans for the weekend except for buying new shoes for Bean. That and getting the kids outside so Baby J can get his wiggles out and Bean can be desensitized even more to whatever was bothering him earlier this week.
-----------
In other news, I'm participating in a special needs blog hop this weekend and looking forward to learning more about the challenges and joys other families are facing. You should check it out, too! 

You Might Also Like :

Back to Featured Articles on Logo Paperblog

These articles might interest you :

  • Father James Martin's Bridge-Building Metaphor and Call to Mutual Respect Betwee...

    Father James Martin's Bridge-Building Metaphor Call Mutual Respect Between Catholic Leaders LGBTQ Community: Critical Commentary

    I have not read Father James Martin's new book Building a Bridge, which calls on the pastoral leaders of the Catholic church to collaborate with the LGBTQ... Read more

    The 22 June 2017 by   William Lindsey
    LGBTQ, RELIGION, SOCIETY
  • Caution: This Can Cause Addiction

    Caution: This Cause Addiction

    I opened my low-carb/keto clinic with Nurse Sylvie in February 2017, inside the medical clinic where I do my regular general practice. To get people to enroll,... Read more

    The 22 June 2017 by   Dietdoctor
    DIET & WEIGHT, HEALTH, HEALTHY LIVING, MEDICINE
  • Review - Vichy Mineral 89 Skin Fortifying Daily Booster

    I'm always battling with dry and dehydrated skin.. even when I do nothing different, my skin will... Click for Read more

    The 22 June 2017 by   Chantana
    HAIR & BEAUTY, LIFESTYLE
  • Talk Show Host: Not Here to Make Friends

    Talk Show Host: Here Make Friends

    photo: Harley Haskett Toronto based Talk Show Host are quick to release a new EP. Not Here to Make Friends sounds cheerful and angry at the same time,... Read more

    The 22 June 2017 by   Hctf
    ENTERTAINMENT, MUSIC
  • The Human Design... Not All Bad!

    Human Design... Bad!

    Whatever or whoever it was that designed the human, had to have been at the least, a sadist. Now the design isn’t all that bad, it’s just that there were a few... Read more

    The 22 June 2017 by   Skip1957
    DIARIES, SELF EXPRESSION
  • Citrus Marshmallow Sundaes

    Citrus Marshmallow Sundaes

    We all know what a Sundae is, and I am sure we have all secretly had one at some stage in our lives even those of us who are now on the healthy no sugar […] Read more

    The 22 June 2017 by   Shadesofcinnamon
    FOOD & DRINK, RECIPES
  • Konkani Style, Hog Plum Pickle…

    Konkani Style, Plum Pickle…

    Summer is full of Sun, fun, travel yumminess.. For those who love Mangoes its the season.. The kids have vacations... The markets are filled with an amazing... Read more

    The 22 June 2017 by   Anithanayak
    FOOD & DRINK, RECIPES