Never Say Never!By Douggosling
Deciding to stop treating a terminal disease is not an easy decision to make but I felt good about making it. There is no cure for my cancer and I have a history of significant side effects from any of the meds I could take. My quality of life was already compromised due to the pain of my bone metastases and the tremendous fatigue I was experiencing from my pain meds and the cancer itself. I didn't want to continue taking treatments that further compromised my quality of life with no potential for cure. Give me something with any reasonable chance of a cure and I'll be all over it but, otherwise, I wanted to focus on enjoying the time I had left.
I have been doing that, with the belief that I would be "okay" until perhaps the last few months of my life. But as I have always known, the cancer journey is full of twists and turns and it ain't over 'till it's over. There was always the chance that something could happen to compromise my quality of life before those last few months. Well, that has happened to me and I am compelled to do what I can to try to meet my main objectives: to maintain my quality of life; to be able to do things to enjoy life; to be able to walk my daughter down the aisle next year.
My cancer has continued to metastasize/spread to my bones. Thankfully, it has not yet spread to any of my organs, but my lower back (specifically, my sacrum) is becoming significantly involved. And I am terrified of the increasing possibility of it breaking (what is called a "pathological fracture"). Depending on where and how it breaks and what nerves are damaged, I could be severely crippled or worse. I can't let that happen. I won't let that happen.
So I find myself once more exploring various treatments including radiation, surgery, drugs, or combinations thereof. I hate it. I hate the decisions I will have to make. I hate the side effects that I will have to suffer through. I hate the limitations it will place on what I can do. I hate the added stress of wondering and hoping and the disappointments that may come.
But I hate more the idea of spending a good portion of my remaining time on my back or the idea of not walking down that aisle. It is not about survival. There is no cure. It's about quality of life. Something that I thought I had wrapped around me to keep me going until......
I've always known that there is nothing simple about life and certainly not about dying. But I still have hope. Hope that it will not be as bad as it could be. Hope that I can continue to find joy in each and every day. There is always hope.
I will continue to write about all the things I planned to write about, perhaps with some new perspectives and new insights. I will definitely have a lot to say. Wish me luck and continue to read.
Thank you all for your kind thoughts and words.
P.S. If you follow my posts via email, make sure you click through to dyingdigitally.com for Personal Updates and other news.
These articles might interest you :
Sometimes I overlook the meaning of true love as I did try to seek it by character. But what I have come to realize is, it’s what you can do and what you have... Read moreThe 07 March 2012 by Kaythie
My friend Jeff is a buttoned-up finance guy in his late thirties who manages a business unit for a large corporate behemoth. We go to the same church, I see... Read moreThe 23 April 2012 by Shrinkingthecamel
SELF EXPRESSION, SPIRITUALITY
Do you know something? I don’t think my husband is lying when he says he doesn’t like hugely inflated, clownish breasts. If I ever ask him about it, he gives... Read moreThe 24 April 2012 by Tempestra
LIFESTYLE, SELF EXPRESSION
This is the story of a girl. A miki girl.I work from 9-5 and do the whole bit, right? Usually at work I am ready to go, and productive. I get everything I need... Read moreThe 19 April 2012 by Mikidemann
DIARIES, SELF EXPRESSION
The idea of promises has always been fascinating for me. As a kid it meant that whatever was promised would happen. In most cases it did. Read moreThe 03 April 2012 by Jyothi
A well known speaker started off his seminar by holding up a Rs.1000 note. In the room of 200, he asked, "Who would like this Rs.1000 note ?" Hands started goin... Read moreThe 09 March 2012 by Unforgettable
I just compiled a quick collection of some of the closest women to me who have helped me become who I am and have been there for me through the good and bad... Read moreThe 08 March 2012 by Blessmybag
MOST POPULAR FROM COMMUNITY
- 2 Song Tuesday: Two Songs You Want to Hear This Week by Dudepins
- Leaving Tinkertown: Book Review by Thegenaboveme
- Being Both: The Paperback by Susankatzmiller
- Clothes Post #5 by Rubytuesday
Christmas Lady Gaga Halloween Apps Michelle Rodriguez Russia Barack Obama Egypt Samsung Harry Potter X-Factor Climate Change North Korea Father's Day Academy Awards Thanksgiving European Union John Galliano The Box Office True Blood Mali Turkey Mardi Gras News Corp Lance Armstrong Hurricane Sandy China Rick Perry Economy Apple