Deciding to stop treating a terminal disease is not an easy decision to make but I felt good about making it. There is no cure for my cancer and I have a history of significant side effects from any of the meds I could take. My quality of life was already compromised due to the pain of my bone metastases and the tremendous fatigue I was experiencing from my pain meds and the cancer itself. I didn't want to continue taking treatments that further compromised my quality of life with no potential for cure. Give me something with any reasonable chance of a cure and I'll be all over it but, otherwise, I wanted to focus on enjoying the time I had left.
I have been doing that, with the belief that I would be "okay" until perhaps the last few months of my life. But as I have always known, the cancer journey is full of twists and turns and it ain't over 'till it's over. There was always the chance that something could happen to compromise my quality of life before those last few months. Well, that has happened to me and I am compelled to do what I can to try to meet my main objectives: to maintain my quality of life; to be able to do things to enjoy life; to be able to walk my daughter down the aisle next year.
My cancer has continued to metastasize/spread to my bones. Thankfully, it has not yet spread to any of my organs, but my lower back (specifically, my sacrum) is becoming significantly involved. And I am terrified of the increasing possibility of it breaking (what is called a "pathological fracture"). Depending on where and how it breaks and what nerves are damaged, I could be severely crippled or worse. I can't let that happen. I won't let that happen.
So I find myself once more exploring various treatments including radiation, surgery, drugs, or combinations thereof. I hate it. I hate the decisions I will have to make. I hate the side effects that I will have to suffer through. I hate the limitations it will place on what I can do. I hate the added stress of wondering and hoping and the disappointments that may come.
But I hate more the idea of spending a good portion of my remaining time on my back or the idea of not walking down that aisle. It is not about survival. There is no cure. It's about quality of life. Something that I thought I had wrapped around me to keep me going until......
I've always known that there is nothing simple about life and certainly not about dying. But I still have hope. Hope that it will not be as bad as it could be. Hope that I can continue to find joy in each and every day. There is always hope.
I will continue to write about all the things I planned to write about, perhaps with some new perspectives and new insights. I will definitely have a lot to say. Wish me luck and continue to read.
Thank you all for your kind thoughts and words.
P.S. If you follow my posts via email, make sure you click through to dyingdigitally.com for Personal Updates and other news.
These articles might interest you :
I remember the day in the middle of the week, the Holy Spirit tugged at my heart. It invited me to take a break and spend some time with Jesus after a... Read moreBy Writerinterrupted
LIFE COACH, SELF EXPRESSION
Credit I was with a younger lad a few years back, he was 18 I was 27.He had quite a high sex drive but I then noticed something strange about it, he never... Read moreBy Therealsupermum
FAMILY, PARENTING, SELF EXPRESSION
If I had only one day in my life...before I die...I would have spent it with you...even if I couldn't meet you...I would have spent the entire day...thinking... Read moreBy Anjanroy
LIFE COACH, LOVE & SEX, SELF EXPRESSION
Don't even THINK about it!!! I have 2 nieces and a nephew, and I find myself always telling them, “Listen, don’t ever even TRY a drug, or even a SIP of... Read moreBy Finallygrowingup
How many times have I said that? Too many to count.Just about two months ago, I wrote a similar post about eating my words when we bought our mini van.So... Read moreBy Babyjandbean
DIARIES, PARENTING, SELF EXPRESSION
Today as the nation remembers one of it's most tragic of days, I too am remembering. Like so many have posted on Facebook today, I don't remember exactly what... Read moreBy Catem
DIARIES, SELF EXPRESSION
Tweet Hungry husband likes squash. Only if it involves a racquet. When it comes to squash the plant, he is pretty apprehensive about it. Last Friday, when I... Read moreBy Fashiontofood
FOOD & DRINK, SELF EXPRESSION
MOST POPULAR FROM COMMUNITY
- The Song of Lunch: Film Review by Thegenaboveme
- Post party.... by Rubytuesday
- Heroes for Children Run 2016 by Barefootdaves
- ASH 2015: Dr. Jeff Jones on Venetoclax for CLL relapse after ibrutinib and idelalisib. by Bkoffman