The Centers for Disease Control, CDC, works with public, non-profit, and private partners to address breast cancer in women by conducting research, convening the Advisory Committee on Breast Cancer in Young Women, funding education and survivorship programs, and educating young women and medical providers about breast cancer and breast health. Some of CDC’s major research projects are listed below.
Advisory Committee on Breast Cancer in Young Women
This committee provides guidance regarding development, implementation, and evaluation of evidence-based activities aimed at prevention, early detection, and survivorship.
Public Health Research
- Breast cancer in young women: reviewing the evidence and setting the course. CDC commissioned a literature review, environmental scan, and expert panel on topics related to breast cancer in young women to identify where the scientific evidence indicates opportunities for public health intervention or a strong need for research.
- Sisters Study extension. The National Institute of Environmental Health Sciences has been conducting a study on 52,000 women who have a close relative with breast cancer to assess genetic and environmental risk factors. CDC added two surveys to their yearly follow-up that assesses risk perception, provider communication, access to and use of support services, and information needs and information-seeking behavior among young breast cancer survivors and their sisters.
- Promoting cancer genomics best practices through surveillance, education, and policy change projects. CDC’s Division of Cancer Prevention and Control worked with CDC’s Office of Public Health Genomics by adding funding to support their cooperative agreements with Oregon and Michigan. This funding was used to increase the scope of those agreements to support additional breast cancer genomics-related activities.
- Estimating infertility among breast cancer survivors in the United States. This study estimated the number of women who have been diagnosed with breast cancer and may have compromised fertility as a result of their treatment. Findings are being used to describe the magnitude of infertility among young breast cancer survivors on a national level, establishing a baseline number of at-risk women.
- Health insurance coverage of genetics services. This study reviews major public and private health insurance plans to assess coverage for genetic counseling and testing for BRCA1 and BRCA2 gene mutations, prevention techniques for those who test positive, and psychosocial support services.
- Walking Together: Making a Path Toward Healing. This study identified information needs and physical, psychological, and spiritual obstacles to care faced by American Indian and Alaska Native women under the age of 45 who were diagnosed with breast cancer.
- Impact of genomics and personalized medicine on the cost-effectiveness of prevention and screening for breast cancer in younger women.
- Economic burden of breast cancer in young women aged 15–44 years in the United States, 2000–2010. This is the first population-based study describing the economic impact of breast cancer on young women.
- Comparative effectiveness and clinical utility of risk assessment tools for hereditary breast and ovarian cancer. This study compares risk assessment tools, models, and algorithms for breast and ovarian cancer risk or decision aids for referral to genetic counseling and testing.
- The economic impact of late-stage breast cancer diagnosis and benefits of reducing alcohol consumption among women aged 18–44 years at high risk for breast cancer. This study estimates the costs of breast cancer treatment stage at diagnosis for women between 18 and 44 years old, the number of breast cancer cases attributed to alcohol use among young women, and the economic benefits to health in reducing alcohol consumption in women who have a high risk of getting breast cancer before age 45.
Source : CDC websites
