Diaries Magazine


By Babyjandbean
Most of the people that read this blog are friends, family, other Williams syndrome (WS) and special needs parents, and various blog buddies. Still, I get a fair amount of traffic from Google searches. - usually about WS. One search from last week really stuck with me. Someone found my blog by typing in "williams syndrome baby sad."
When I first got Bean's WS diagnosis, my heart broke for the challenges he would face and I mourned the life that I had wanted for him. At times, I was so overwhelmed that I couldn't catch my breath.
I couldn't get enough information and I spent countless hours looking at Web sites and blogs. I connected with a group of other WS families and quickly learned about all the joys Bean has in store for me. The most important thing that was reinforced for me was that Bean is still the same amazing, joyful, charismatic - and sometimes brutally challenging - little guy that he was the day before we got the diagnosis.
The sadness quickly dissipated, the grief passed and I was filled with hope for a wonderfully magical life with my sweet dude. I realized that though he may not live the life I had hoped for him, he would live the life that is perfect for him. I realized that the diagnosis really didn't change anything and wrote about that realization here.
Don't get me wrong, we have our days. It's hard sometimes. I am a worrier and I get frustrated that we spend so much time in doctor appointments and therapy instead of playing and exploring. But, I have learned to just breathe and get through those moments. Because they do pass. Life is good and Bean such an amazing and delightful boy. I embrace and appreciate everything about him, including WS and everything that goes along with it.
So, for the parent of a newly diagnosed child, it's ok to be sad. It's normal. And know the sadness will pass. There is a wonderful support network in place. Please reach out to us. Contact the Williams Syndrome Association. They can give you a wealth of information and put you in contact with someone in your region. Contact me and I'll offer all the support I can and I will put you in touch with an amazing group of parents that have been there, done that. Your child will bring more joy to your life than you ever could have expected. Each day gets easier and you will be able to breathe deeply again.

You Might Also Like :

Back to Featured Articles on Logo Paperblog

These articles might interest you :

  • Just Breathe

    So, as you may or may not know, I am off to Florida for a bachelorette party weekend. Plans consist of shopping, swimming, Universal Studios, and dancing. Read more

    By  Laureneverafter
  • Just Breathe.

    Just Breathe.

    You have got to be kidding me. This phrase has slipped through my lips several times lately. The last few days have been quite...interesting. Life, never... Read more

    By  Hpranitis
  • This is the Air I Breathe...

    This Breathe...

    Tuesday. Tuesday. Tuesday. I am thankfully in Dyersburg today to spend some time with my sweet boy and his family for 4th of July! I am too excited to see all o... Read more

    By  Annadicus
  • My Hair Can Breathe

    Hair Breathe

    Oh, give thanks to the Lord, for He is good! For His mercy endures forever. — Psalm 136:1 The weather has been kinder lately… Except for the heavy downpour... Read more

    By  Irene9583
  • A Full-time Job, Two Internships, Blogging, Writing, and Remembering to Breathe.

    Full-time Job, Internships, Blogging, Writing, Remembering Breathe.

    Yesterday marked my first day as an intern with a magazine. I came in, gathered my assignments, and set off to work. I worked in an office with two windows and ... Read more

    By  Laureneverafter
  • Bow & Breathe


    Every show is different.…Outside of the obvious, I mean it in the ways that they affect you; Even down to the basics of blocking rehearsals, and early French... Read more

    By  Shewritesalittle
  • Congestive Heart Failure – Causes, Symptoms and Treatment

    Congestive Heart Failure Causes, Symptoms Treatment

    What Is Congestive Heart Failure? Congestive heart failure means the blood pumping power has gone down and is found to be lower if compared to normal rate of... Read more

    By  Allyson3james