Bkoffman
MY BLOGS
-
BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 357 )
-
Prevalence and Economic Burden of Chronic Lymphocytic Leukemia (CLL) in the Era...
This has been a banner year for developments in the treatment of CLL. In this last week of 2015 on the CLL Society website, in our Conference Coverage section,... Read more
Posted on 29 December 2015 COMMUNITY, HEALTH -
CLL Society Newsletter with Dr. Byrd on ACP-196 and Dr. Furman Answering...
The CLL Society’s 2nd newsletter is out at http://www.cllsociety.org/newsletter/.There is a fresh interview with Dr. Byrd on his exciting ACP-196 data, Dr.... Read more
Posted on 25 December 2015 COMMUNITY, HEALTH -
Radiation Doses- What to Worry About and What to Shrug Off When We Have CLL...
No amount of radiation is good for us. Ionizing radiation damages DNA and increases cancer risk. No question about it. So avoid x-rays unless they are truly... Read more
Posted on 21 December 2015 COMMUNITY, HEALTH -
Starting a CLL (chronic Lymphocytic Leukemia) Society Support Group in LA Area
Dear friends and fellow CLLers,If you live has been touched by CLL, then you realize how valuable a CLL specific support group can be.And some of us live in... Read more
Posted on 15 December 2015 COMMUNITY, HEALTH -
CLL PATIENT AND CAREGIVER EDUCATIONAL FORUM at City of Hope This Saturday
I'll be at City of Hope this Saturday with the latest news from ASH earlier this week and learn how a support group can improve our odds. It's not to late to... Read more
Posted on 11 December 2015 COMMUNITY, HEALTH -
Heading Home from Ash
Our flight is delayed from Orlando and we have a tight connect in Phoenix. What else is new! Not looking good.ASH 2015 was amazing. So much good news and... Read more
Posted on 09 December 2015 COMMUNITY, HEALTH -
I Am off to ASH 2015 to Learn Everything I Can About CLL and I Have a Miserable...
I got my biannual cold that seems to come just as I am planning to get on the plane to the be the only family doctor among 30,000 or so hematologists and... Read more
Posted on 01 December 2015 COMMUNITY, HEALTH -
Despite My CLL, I Have Almost Normal Lab as I Head to ASH Next Week
I am back from a quick trip to Ohio State University, Columbus, Ohio to see Dr. Byrd for my ibrutinib trial with good news.My clinical exam was normal - no... Read more
Posted on 29 November 2015 COMMUNITY, HEALTH -
Personal Update on My CLL: I Am Doing Well with a Near Normal MR and No...
I had MR imaging of my abdomen and pelvis earlier this week at St. Jude. The results were compared to my CT scans done on June 30, 2014 at Ohio State, about 16... Read more
Posted on 12 November 2015 COMMUNITY, HEALTH -
CLL Society, LLS And City of Hope for CLL Specific Educational Forum and the...
This will be a super meeting right after ASH and will be a chance to get a LA support group going. Click here to register: https://cllforum.questionpro. Read more
Posted on 06 November 2015 COMMUNITY, HEALTH -
Patient Advocacy in Clinical Trials in CLL (chronic Lymphocytic Leukemia)
Friends,Today on the CLL Society website, we share an interview with Laura Cleveland, a CLL patient whom I interviewed at the CLL Society and Leukemia and... Read more
Posted on 30 October 2015 COMMUNITY, HEALTH -
New Immune Clinical Trials and an Explanation of Cellular Immunity in CLL (...
Friends,On the CLL Society website, we share two interesting articles:1. An interview with Dr. John Gribben whom I interviewed at the CRC (CLL Research... Read more
Posted on 28 October 2015 COMMUNITY, HEALTH -
LLS Sponsored CLL ( Chronic Lymphocytic Leukemia) Educational Program Tomorrow a...
If you want a personal response, or just want to stay in touch, please email me at [email protected]. I have no other way of contacting. Thanks. Stay... Read more
Posted on 13 October 2015 COMMUNITY, HEALTH -
Questions and Answers Provoked by My Blog on CLL (chronic Lymphocytic Leukemia)
Here are best answers to some questions I recently received. Please email questions as it is difficult to respond this way. Remember I am not a hematologist,... Read more
Posted on 12 October 2015 COMMUNITY, HEALTH -
Here Are Best Answers to Some Questions I Recently Receiv...
Here are best answers to some questions I recently received. Please email questions as it is hard to respond this wayPlease explain if CD 19 is present on both... Read more
Posted on 12 October 2015 COMMUNITY, HEALTH -
Dr. Byrd Updating the Trial Data on Ibrutinib for CLL (Chronic Lymphocytic...
This week's new post on the CLL Society website http://cllsociety.org is an update of the data from trials with ibrutinib in treatment-naïve and relapsed... Read more
Posted on 09 October 2015 COMMUNITY, HEALTH -
LRF 2015 North American Educational Forum on Lymphoma in Brooklyn
I am on my way home from the North American Educational Forum on Lymphoma in Brooklyn, New York. Very tired, but satisfied.Honestly I didn't go expecting to... Read more
Posted on 05 October 2015 COMMUNITY, HEALTH -
The CLL Tribune Launched Today
FriendsThe inaugural CLL Tribune launched today at http://www.cllsociety.org/newsletter/ Don't miss it. Lots of hard work by many fellow patients and caregivers... Read more
Posted on 30 September 2015 COMMUNITY, HEALTH -
Dr. Byrd on Trial Design and Getting Drugs to Market for CLL ( Chronic...
This week on the CLL Society website, we share an interview with my trial doctor, Dr. John Byrd out of Ohio State University, discussing how CLL drugs get to... Read more
Posted on 28 September 2015 COMMUNITY, HEALTH -
The Work Needed to Maintain Our " Bright Future" with CLL (chronic Lymphocytic...
This week on the CLL Society website, I present my contrarian thoughts on the “bright future” for those of us with CLL.We have all heard repeatedly how bright... Read more
Posted on 26 September 2015 COMMUNITY, HEALTH
