Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 352 )
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The Perfect Stranger: Meeting Wanda's Hematopoietic Stem Cell Transplant (HSCT)...
Aaron, Wanda, and me, Newport Beach, 2013My friend, Wanda had a particularly nasty form of CLL. I say had, because she has been disease free for long time, all... Read more
Posted on 14 April 2013 COMMUNITY, HEALTH -
Closer to Approval for CLL? Ibrutinib Receives a Third Breakthrough Designation...
Here is the first part of the official press release on the third breakthrough designation for ibrutinib. This one is close to home. Read more
Posted on 08 April 2013 COMMUNITY, HEALTH -
My Cousins, Arlene and Bob: Bob Was the Best Prime Minister That Canada NEVER Had
Another quick break from CLL, this time to commemorate the passing of an era for Canada in general and my extended family in particular, as my cousin Bob Rae... Read more
Posted on 07 April 2013 COMMUNITY, HEALTH -
ASH 2012: Dr. Richard Furman Discusses What is Known and What Isn't About the Ne...
In the final part of Dr. Furman's interview from ASH 2012, the doctor who had the most early experience with GS-1101 (idelasilib) and ibrutinib discusses the... Read more
Posted on 01 April 2013 COMMUNITY, HEALTH -
Why to Avoid Iron If We Don't Really Need It: Anemia in CLL
I was asked what is the risk of getting too much iron.Here is an extended version of my answer.Hi Bill,Iron overload is a difficult issue should one become... Read more
Posted on 30 March 2013 COMMUNITY, HEALTH -
Live from the Infusion Center: Anemic Again
My blood draw at the cancer center for my IVIG infusion showed that I am mildly anemic again. Hgb was only 13.2 which is the lowest it has been since last... Read more
Posted on 26 March 2013 COMMUNITY, HEALTH -
ASH 2012: Dr. Rick Furman Discussed the Very Early Experiences with Idelalisib...
This video is a real treat as it shows us the recent history of the small molecules that are changing our future.And the narrator, Dr. Read more
Posted on 25 March 2013 COMMUNITY, HEALTH -
Leonard Cohen: Like Any Dealer, He Was Watching for the Card That is So High...
Leonard Cohen, Isle of Wight 1970Stranger SongMore nuggets that inform my life came out of this plaintive song and from that whole first album than it is health... Read more
Posted on 22 March 2013 COMMUNITY, HEALTH -
St Patrick's Day with The Fenians
The Grove in Orange County (the squeezebox player looks right at home in his kilt)Orange County's own local Irish rock band, the Fenians. Such fun. Celtic Rock. Read more
Posted on 18 March 2013 COMMUNITY, HEALTH -
Saying No to Chemo: Non -Chemo Options for CLL, Part 1
This is probably the most common question that I am asked."I know that I need therapy, my CLL is taking off, but I don't want any chemo, so what are my... Read more
Posted on 10 March 2013 COMMUNITY, HEALTH -
ASH 2012: Dr. Wierda and Practical Advice on CAR-T Trials
In part two and final part of my interview from ASH 2012 with Dr. Wierda from MD Anderson (please see part one first to get oriented) talks about some of the... Read more
Posted on 07 March 2013 COMMUNITY, HEALTH -
The Great Big Sea
Enough CLL for moment.Tonight, I was at genuinely fun unpretentious folk-rock-celtic-trad concert from the best band to ever sail from the cold and rocky shore... Read more
Posted on 06 March 2013 COMMUNITY, HEALTH