Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 352 )
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IVIG: FDA Demands More Prominent Notification of the Risk of Blood Clots
I get IVIG for my ITP. It used to be every three weeks, but now I have been able to stretch it out to every six and my counts are still great. Read more
Posted on 15 June 2013 COMMUNITY, HEALTH -
New Adverse Event for Ibrutinib: Brittle Nails
The Registration Trials that are ongoing are purposed not only to find out if the strong response rates seen in the earlier phase 1 and 2 trials hold up with... Read more
Posted on 13 June 2013 COMMUNITY, HEALTH -
ASCO 2013: The Increasing Numbers with Ibrutinib
As many of you know I have done very well on ibrutinib for the last year. When I started on PCI-32765 on May 7, 2012, there had been just a little more than a... Read more
Posted on 05 June 2013 COMMUNITY, HEALTH -
ASCO 2013: A Call for New Ways of Thinking
LIVE from ASCO 2013It's huge.It's crazy.It's crowded.But boy is there a ton of new research to share.While ibrutinib and idelalisib have kicked open the door... Read more
Posted on 01 June 2013 COMMUNITY, HEALTH -
Live from ASCO 2013: Targeted B Cell Therapies
Raw review of the first session on targeted B cell therapies.Typing fast. May have made errors but wanted to get this outAfter my bad karma of a weird 35 miles... Read more
Posted on 31 May 2013 COMMUNITY, HEALTH -
Doctor Turned Patient
I have commented before on the extra advantages and risks of being a healthcare provider, a doctor, facing any serious illness, in my case an indolent (slow) bu... Read more
Posted on 30 May 2013 COMMUNITY, HEALTH -
Good News on the Home Front and Sad News at the Hospital
I have managed to stay out of the infusion center where I get my IVIG for a full five weeks and my lab results today were great.My hemoglobin was the highest... Read more
Posted on 30 May 2013 COMMUNITY, HEALTH -
ASCO 2013 Abstract: ABT-199 in Relapsed and Refractory CLL Patients
I have posted before on ABT-199. I like this drug because it works. And it is a pill, not an IV.It is clearly a very potent therapy. Read more
Posted on 27 May 2013 COMMUNITY, HEALTH -
ASCO 2013: Press Release and Abstract About Idelalisib (CAL-101 Or GS1101) in...
This is why I go to ASCO and ASH and hope to get to Europe for IWCLL. To get the inside scoop on these studies. To talk to the investigators about the data... Read more
Posted on 24 May 2013 COMMUNITY, HEALTH -
ASH 2012: Dr. David P Steensma: Myelodysplastic Syndrome with a Focus on...
Dr. David Steensma is a world leader in not only basic laboratory and clinical research on MDS, but also in examining the impact that anemia has on the life of... Read more
Posted on 22 May 2013 COMMUNITY, HEALTH -
Personal Travels
With ASCO (AmericanSociety of Clinical Oncology) and EHA (European Hematology Association)upcoming, a significant backlog of abstracts to review, promised... Read more
Posted on 20 May 2013 COMMUNITY, HEALTH -
Ibrutinib Research from Dr. Wiestner at the NIH
Below is the press release (PR) from the recent meeting in Washington, DC of the AACR (American Assoc. of Cancer Research) concerning the research by Dr.... Read more
Posted on 14 May 2013 COMMUNITY, HEALTH -
ASH 2012: Dr. Adrian Wiestner: Final Thoughts
The thoughtful Dr. Wiestner of the NIH has some provocative things to say in this brief 2 minute wrap up of our interview.He says that there may be a significan... Read more
Posted on 09 May 2013 COMMUNITY, HEALTH -
Will Your Insurance Cover a Clinical Trial?
This important information is from the CLL ACOR list.I am one lucky dude to live in California, for many reasons, including clinical trial coverage. Read more
Posted on 08 May 2013 COMMUNITY, HEALTH -
Non-Chemo Approaches to CLL in and out of Trials: Lenalidomide
Avoiding chemo, especially when it doesn't cure any of us with CLL/SLL, has always made good sense. My readers know my mantra of protecting our bone marrow and... Read more
Posted on 05 May 2013 COMMUNITY, HEALTH -
ABT-199 is Coming Back
ABT-199 is soon coming back to trial near you and this could be very good news.News release from AbbVie (formerly part of Abbott):ABT-199, our next-generation... Read more
Posted on 02 May 2013 COMMUNITY, HEALTH -
Visit to OSU: All Good
My Picture for OSU Poster Campaign for their Clinical TrialMy wife and I had a wonderful visit to OSU and Columbus for many reasons, and will share more soon,... Read more
Posted on 01 May 2013 COMMUNITY, HEALTH -
ASH 2012: Dr. Adrian Wiestner of the NIH (NHLBI) on His Research Findings with...
Even though the Annual Meeting of the American Society of Clinical Oncologists or ASCO is only a month away, there is still much valuable information to share... Read more
Posted on 28 April 2013 COMMUNITY, HEALTH -
The Next Best Thing: The Fab Four
The FAB FOURI saw the real Fab Four in 1966 at Maple Leaf Garden in Toronto, a place built for hockey, not music.I say saw because all I heard was the screams o... Read more
Posted on 22 April 2013 COMMUNITY, HEALTH -
My Interview at OSU for the Ibrutinib Trial
This is the article that discusses my clinical trial. My photo with Dr. Byrd is on the cover on the magazine and I was interviewed for the text. The writer,... Read more
Posted on 16 April 2013 COMMUNITY, HEALTH