Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 357 )
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Sydney Lilah Sowers
Meet my beautiful very smart new granddaughter who is now about six weeks old. She was named after my late father and her great grandfather, both of blessed... Read more
Posted on 02 July 2013 SELF EXPRESSION -
Immunotherapy for Metastatic Melanoma
The big news out of ASCO 2013 was not about CLL, but about metastatic melanoma.ASCO is well known to be more of a solid tumor meeting and it lived up to its... Read more
Posted on 30 June 2013 COMMUNITY, HEALTH -
More News on Ibrutinib
The New England Journal of Medicine (NEJM) is arguably the most prestigious medical journal in the world. It is not easy to get your research into its pages... Read more
Posted on 27 June 2013 COMMUNITY, HEALTH -
The Biggest Mistake Patients Make
This is a link to an interesting post.Even doctors are not immune to thinking anecdotally. Our personal mistakes and successes inform our future decisions and... Read more
Posted on 19 June 2013 COMMUNITY, HEALTH -
Delays
OK, it is not about CLL or cancer survivorship, but I am delayed again for hours at an airport. Second time to or from Chicago in two weeks. Hours of sitting... Read more
Posted on 16 June 2013 COMMUNITY, HEALTH -
IVIG: FDA Demands More Prominent Notification of the Risk of Blood Clots
I get IVIG for my ITP. It used to be every three weeks, but now I have been able to stretch it out to every six and my counts are still great. Read more
Posted on 15 June 2013 COMMUNITY, HEALTH -
New Adverse Event for Ibrutinib: Brittle Nails
The Registration Trials that are ongoing are purposed not only to find out if the strong response rates seen in the earlier phase 1 and 2 trials hold up with... Read more
Posted on 13 June 2013 COMMUNITY, HEALTH -
ASCO 2013: The Increasing Numbers with Ibrutinib
As many of you know I have done very well on ibrutinib for the last year. When I started on PCI-32765 on May 7, 2012, there had been just a little more than a... Read more
Posted on 05 June 2013 COMMUNITY, HEALTH -
ASCO 2013: A Call for New Ways of Thinking
LIVE from ASCO 2013It's huge.It's crazy.It's crowded.But boy is there a ton of new research to share.While ibrutinib and idelalisib have kicked open the door... Read more
Posted on 01 June 2013 COMMUNITY, HEALTH -
Live from ASCO 2013: Targeted B Cell Therapies
Raw review of the first session on targeted B cell therapies.Typing fast. May have made errors but wanted to get this outAfter my bad karma of a weird 35 miles... Read more
Posted on 31 May 2013 COMMUNITY, HEALTH -
Doctor Turned Patient
I have commented before on the extra advantages and risks of being a healthcare provider, a doctor, facing any serious illness, in my case an indolent (slow) bu... Read more
Posted on 30 May 2013 COMMUNITY, HEALTH -
Good News on the Home Front and Sad News at the Hospital
I have managed to stay out of the infusion center where I get my IVIG for a full five weeks and my lab results today were great.My hemoglobin was the highest... Read more
Posted on 30 May 2013 COMMUNITY, HEALTH -
ASCO 2013 Abstract: ABT-199 in Relapsed and Refractory CLL Patients
I have posted before on ABT-199. I like this drug because it works. And it is a pill, not an IV.It is clearly a very potent therapy. Read more
Posted on 27 May 2013 COMMUNITY, HEALTH -
ASCO 2013: Press Release and Abstract About Idelalisib (CAL-101 Or GS1101) in...
This is why I go to ASCO and ASH and hope to get to Europe for IWCLL. To get the inside scoop on these studies. To talk to the investigators about the data... Read more
Posted on 24 May 2013 COMMUNITY, HEALTH -
ASH 2012: Dr. David P Steensma: Myelodysplastic Syndrome with a Focus on...
Dr. David Steensma is a world leader in not only basic laboratory and clinical research on MDS, but also in examining the impact that anemia has on the life of... Read more
Posted on 22 May 2013 COMMUNITY, HEALTH -
Personal Travels
With ASCO (AmericanSociety of Clinical Oncology) and EHA (European Hematology Association)upcoming, a significant backlog of abstracts to review, promised... Read more
Posted on 20 May 2013 COMMUNITY, HEALTH -
Ibrutinib Research from Dr. Wiestner at the NIH
Below is the press release (PR) from the recent meeting in Washington, DC of the AACR (American Assoc. of Cancer Research) concerning the research by Dr.... Read more
Posted on 14 May 2013 COMMUNITY, HEALTH -
ASH 2012: Dr. Adrian Wiestner: Final Thoughts
The thoughtful Dr. Wiestner of the NIH has some provocative things to say in this brief 2 minute wrap up of our interview.He says that there may be a significan... Read more
Posted on 09 May 2013 COMMUNITY, HEALTH -
Will Your Insurance Cover a Clinical Trial?
This important information is from the CLL ACOR list.I am one lucky dude to live in California, for many reasons, including clinical trial coverage. Read more
Posted on 08 May 2013 COMMUNITY, HEALTH -
Non-Chemo Approaches to CLL in and out of Trials: Lenalidomide
Avoiding chemo, especially when it doesn't cure any of us with CLL/SLL, has always made good sense. My readers know my mantra of protecting our bone marrow and... Read more
Posted on 05 May 2013 COMMUNITY, HEALTH
