Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 352 )
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iwCLL 2013: Dr. George Calin on Micro-RNA
Dr. George Calin trained in Romania as a gastroenterologist, did ground breaking genetic research in CLL in the lab of the brilliant Italian born geneticist,... Read more
Posted on 06 November 2013 COMMUNITY, HEALTH -
One More Weapon in Our Arsenal: Obinutuzumab is Approved for Treatment Naive...
That was pretty fast.Obinutuzumab is a third generation monoclonal antibody (mAb) directed against a marker (CD20) sitting on the surface of B cells, including... Read more
Posted on 02 November 2013 COMMUNITY, HEALTH -
iwCLL 2013: My Advice to Patients About Their Therapy and How to Talk with Your...
It was a delight for me to be asked by Andrew Schorr on behalf of Patient Power to be interviewed in order to share the patient's perspective on how to use all... Read more
Posted on 25 October 2013 COMMUNITY, HEALTH -
Cancer Does Not Define Or Limit Us
I read this obituary notice today and it struck a note of defiance and wisdom that I wanted to share:YAKIMA - “When you write my obituary, do not say I fought... Read more
Posted on 19 October 2013 COMMUNITY, HEALTH -
Ups and Downs: Time to Under React Again
My blood count has gone from anemic to normal to anemic and back to normal all in about two weeks.My platelets remain nice and high near 400,000, my ALC... Read more
Posted on 17 October 2013 COMMUNITY, HEALTH -
iwCLL 2013: Dr. Jan Burger Discusses More Details on How the New Targets...
In the second of my three part interview with Dr. Burger out of MDACC, we get into some of the gritty details about how the new novel agents such as ibrutinib o... Read more
Posted on 13 October 2013 COMMUNITY, HEALTH -
Gilead to Stop Phase 3 Study 116 of Idelalisib in Chronic Lymphocytic Leukemia...
The following press release is full of good news and positive details about the trial and Gilead's plan: the expected, and now confirmed "highly significant... Read more
Posted on 11 October 2013 COMMUNITY, HEALTH -
iwCLL 2013: Dr. Jan Burger Discusses the Role of the Micro-environment in CLL:...
On the first day of iwCLL 2013 in Koln, Germany, Dr. Jan Burger presented important basic science lab based research on how our CLL cells survive and grow in... Read more
Posted on 08 October 2013 COMMUNITY, HEALTH -
iwCLL 2013: The Patient's Perspective
My friend and fellow CLLer, Andrew Schorr, asked to interview me to give patient's perspective for his helpful website, Patient Power when we both at the iwCLL... Read more
Posted on 04 October 2013 COMMUNITY, HEALTH -
News from the Infusion Center: Taking a Normal CBC for Granted
I went seven weeks between blood draws and my infusion of IVIG to coat and protect my platelets.The CBC is usually reported back within minutes at the oncology... Read more
Posted on 03 October 2013 COMMUNITY, HEALTH -
Live From LRF (Lymphoma Research Foundation) Educational Forum
View from the Brooklyn PromenadeThe weather in Brooklyn is wonderful and the view from the nearby Brooklyn Heights Promenade is iconic. Read more
Posted on 29 September 2013 COMMUNITY, HEALTH -
Leaving Home
Spending my last few minutes in the big beautiful house where I spent the last 10 years. Where I almost died, and I have lived strong. Read more
Posted on 23 September 2013 COMMUNITY, HEALTH -
CLL: Eight Years and Counting
"The whole world is a very narrow bridge. The important thing is not be afraid."Rabbi Nachman of BreslovWalking 30 feet up on a telephone pole at the Cancer... Read more
Posted on 17 September 2013 COMMUNITY, HEALTH -
XV iwCLL 2013: Interview with Dr. Castro on the Biology of CLL
My long time friend and crusader, Dr. Januario Castro, who works with Dr. Kipps at UCSD, besides caring for CLL and transplant patients, is doing important... Read more
Posted on 16 September 2013 COMMUNITY, HEALTH -
iwCLL2013: Day 3 Heading Home Tomorrow Full of Hope and New Knowledge
The schedule at iwCLL 2013, Cologne, Germany has been exhausting but most hopeful.My son and I completed interviews with ten different CLL specialists and I... Read more
Posted on 12 September 2013 COMMUNITY, HEALTH -
iwCLL 2013: Day One
So far iwCLL 2013 has been a very cutting edge and bench science driven conference. Great stuff, but not easy stuff to digest.Tomorrow that changes with more... Read more
Posted on 09 September 2013 COMMUNITY, HEALTH -
iwCLL 2013: Live from Cologne: The Opening Ceremony and Reception
Let me just say that this is going to an amazing conference. An Cologne is old worldly and charming, though vegan food will be a challenge. Read more
Posted on 08 September 2013 COMMUNITY, HEALTH -
First We Take Berlin
The powerful and haunting wordless Memorial to the Murdered Jews of EuropeThe symbol of Berlin, in victory and in peace, divided and unified, the Brandenburg... Read more
Posted on 06 September 2013 TRAVEL -
Large Granular Lymphocytic Leukemia: What We CLL Patients Can Learn from a...
This week in Blood there was a very interesting article published on a very rare form of blood cancer, LGLL or large granular lymphocytic leukemia. Read more
Posted on 31 August 2013 COMMUNITY, HEALTH -
ASCO 2013: Dr. Jeff Sharman on Mantle Cell Lymphoma (MCL) and Coffee and Road...
Dr. Sharman is a great educator with a super blog on CLL and NHL (Non-Hodgkin's Lymphoma) talks about MCL.He points out the specific challenges with MCL and... Read more
Posted on 28 August 2013 COMMUNITY, HEALTH