Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 357 )
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iwCLL 2013: Pharmacogenetics and Dr. Jeff Sharman Discusses New Prognostic...
In this interview from iwCLL 2013 with Dr. Jeff Sharman, a very clear teacher and community based cancer researcher, we learn about what I call the coming... Read more
Posted on 17 November 2013 COMMUNITY, HEALTH -
iwCLL 2013: Dr. Jeff Sharman Discusses New Prognostic Factors and...
In this interview with Dr. Jeff Sharman, a very clear teacher and community based cancer researcher, we learn about what I call the coming third generation of... Read more
Posted on 17 November 2013 COMMUNITY, HEALTH -
It's All Too Much: The Loss of a CLL Friend and the Approval of Ibrutinib for...
The world of CLL is unrelenting and demanding.I tried to step away for a few days, but news, good and bad, swirled into the center of my vision, and if that... Read more
Posted on 15 November 2013 COMMUNITY, HEALTH -
A Break from CLL: Grandfather and Granddaughter
Is there anything better in the world than having a baby fall asleep in your arms?Maybe if the baby is your granddaughter.Another reminder of why I am fighting... Read more
Posted on 12 November 2013 COMMUNITY, HEALTH -
iwCLL 2013: Part 2: Dr. George Calin Explains More About the Critical Role of...
Besides addressing our critical importance of needing to understand the biology of our cancer in order to stop it, in Part Two of my interview from iwCLL 2013,... Read more
Posted on 11 November 2013 COMMUNITY, HEALTH -
iwCLL 2013: Dr. George Calin on Micro-RNA
Dr. George Calin trained in Romania as a gastroenterologist, did ground breaking genetic research in CLL in the lab of the brilliant Italian born geneticist,... Read more
Posted on 06 November 2013 COMMUNITY, HEALTH -
One More Weapon in Our Arsenal: Obinutuzumab is Approved for Treatment Naive...
That was pretty fast.Obinutuzumab is a third generation monoclonal antibody (mAb) directed against a marker (CD20) sitting on the surface of B cells, including... Read more
Posted on 02 November 2013 COMMUNITY, HEALTH -
iwCLL 2013: My Advice to Patients About Their Therapy and How to Talk with Your...
It was a delight for me to be asked by Andrew Schorr on behalf of Patient Power to be interviewed in order to share the patient's perspective on how to use all... Read more
Posted on 25 October 2013 COMMUNITY, HEALTH -
Cancer Does Not Define Or Limit Us
I read this obituary notice today and it struck a note of defiance and wisdom that I wanted to share:YAKIMA - “When you write my obituary, do not say I fought... Read more
Posted on 19 October 2013 COMMUNITY, HEALTH -
Ups and Downs: Time to Under React Again
My blood count has gone from anemic to normal to anemic and back to normal all in about two weeks.My platelets remain nice and high near 400,000, my ALC... Read more
Posted on 17 October 2013 COMMUNITY, HEALTH -
iwCLL 2013: Dr. Jan Burger Discusses More Details on How the New Targets...
In the second of my three part interview with Dr. Burger out of MDACC, we get into some of the gritty details about how the new novel agents such as ibrutinib o... Read more
Posted on 13 October 2013 COMMUNITY, HEALTH -
Gilead to Stop Phase 3 Study 116 of Idelalisib in Chronic Lymphocytic Leukemia...
The following press release is full of good news and positive details about the trial and Gilead's plan: the expected, and now confirmed "highly significant... Read more
Posted on 11 October 2013 COMMUNITY, HEALTH -
iwCLL 2013: Dr. Jan Burger Discusses the Role of the Micro-environment in CLL:...
On the first day of iwCLL 2013 in Koln, Germany, Dr. Jan Burger presented important basic science lab based research on how our CLL cells survive and grow in... Read more
Posted on 08 October 2013 COMMUNITY, HEALTH -
iwCLL 2013: The Patient's Perspective
My friend and fellow CLLer, Andrew Schorr, asked to interview me to give patient's perspective for his helpful website, Patient Power when we both at the iwCLL... Read more
Posted on 04 October 2013 COMMUNITY, HEALTH -
News from the Infusion Center: Taking a Normal CBC for Granted
I went seven weeks between blood draws and my infusion of IVIG to coat and protect my platelets.The CBC is usually reported back within minutes at the oncology... Read more
Posted on 03 October 2013 COMMUNITY, HEALTH -
Live From LRF (Lymphoma Research Foundation) Educational Forum
View from the Brooklyn PromenadeThe weather in Brooklyn is wonderful and the view from the nearby Brooklyn Heights Promenade is iconic. Read more
Posted on 29 September 2013 COMMUNITY, HEALTH -
Leaving Home
Spending my last few minutes in the big beautiful house where I spent the last 10 years. Where I almost died, and I have lived strong. Read more
Posted on 23 September 2013 COMMUNITY, HEALTH -
CLL: Eight Years and Counting
"The whole world is a very narrow bridge. The important thing is not be afraid."Rabbi Nachman of BreslovWalking 30 feet up on a telephone pole at the Cancer... Read more
Posted on 17 September 2013 COMMUNITY, HEALTH -
XV iwCLL 2013: Interview with Dr. Castro on the Biology of CLL
My long time friend and crusader, Dr. Januario Castro, who works with Dr. Kipps at UCSD, besides caring for CLL and transplant patients, is doing important... Read more
Posted on 16 September 2013 COMMUNITY, HEALTH -
iwCLL2013: Day 3 Heading Home Tomorrow Full of Hope and New Knowledge
The schedule at iwCLL 2013, Cologne, Germany has been exhausting but most hopeful.My son and I completed interviews with ten different CLL specialists and I... Read more
Posted on 12 September 2013 COMMUNITY, HEALTH
