Bkoffman

LATEST ARTICLES ( 352 )

• When Sportswriters Cover the Cancer Beat: The Uneven Reporting of the Bob...

  The owners of the NFL team, the Texans, Bob McNair has come out and shared his successful battle with CLL and a very aggressive squamous cell (skin) cancer. Read more

  Posted on 10 August 2014 COMMUNITY, HEALTH

• Zydelig: The Black Box Warnings for Use in CLL (Chronic Lymphocytic Leukemia),...

  Before you get very far into the Zydelig (CAL 101 or GS 1101 or idelasilib) label, you come across a big bold black box warning. Read more

  Posted on 07 August 2014 COMMUNITY, HEALTH

• FDA Approval of Idelalisib (or CAL-101 Or GS-1101 Or Now Zydelig) for CLL...

  It was another good week for those of us with CLL/SLL and our friends with Follicular Lymphoma (FL).CAL-101 AKA GS-1101 AKA idelalisib AKA Zydelig (See Dr. Read more

  Posted on 01 August 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Kipps Discusses Targeted Therapy and Obinutuzumab in the Treatmen...

  In the first brief section of my video interview from ASCO 2014, Dr. Tom Kipps, my personal doctor at UCSD, and mentions the buzz about ibrutinib (IMBRUVICA)... Read more

  Posted on 17 July 2014 COMMUNITY, HEALTH

• More Good News- Update on My Lab, CT Scans, and General CLL (chronic...

  My blog has veered far away from the simple telling of my story to more telling of our stories with much B roll. I am making plans to maybe bifurcate its conten... Read more

  Posted on 15 July 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. Byrd on the New Data on Ibrutinib and Obinutuzumub in CLL...

  In my final post from the last days of ASH 2013 (lots more to come from ASCO 2014), my doctor, Dr. John Byrd out of Ohio State (OSU) in the third part of our... Read more

  Posted on 12 July 2014 COMMUNITY, HEALTH

• EHA 2014: Encouraging News on the Pneumonia Vaccine in CLL ( Chronic...

  In all the excitement about the research being presented at ASH and ASCO and EHA on the new therapies for CLL, it is important to remember that infection, mostl... Read more

  Posted on 25 June 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. John Byrd Discusses ONO-4059 and IPI-145 for the Treatment of CLL

  In the second part of my three part interview from ASH 2013 in December 2013 from New Orleans, with my doctor for my clinical trial, Dr. Read more

  Posted on 18 June 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. Byrd Discusses Dinaciclib and the Need for More New Drugs to...

  ASCO 2014 in Chicago was whirlwind with important updates to all of us with CLL.Since returning a week ago, it has been an even crazier pace, but over the next... Read more

  Posted on 12 June 2014 COMMUNITY, HEALTH

• The Exciting Pipeline of New Oral Therapies for CLL (chronic Lymphocytic...

  

  I usually don't simply share links, but there is a nice interview with Dr. Wierda of MD Anderson on how treatment for CLL is changing. Due to scheduling... Read more

  Posted on 30 May 2014 COMMUNITY, HEALTH

• ASH 2013:Dr. John Pagel Discusses the Risks and Benefits of ABT-199 and TRU-016...

  In the final segment of my interview with Dr. Pagel from ASH 2013, he discusses ABT-199 and TRU-016 or otlertuzumab (yet another mouthful for us to poor patient... Read more

  Posted on 29 May 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. John Pagel Speculates on the Future of CLL (chronic Lymphocytic...

  In the second part of our interview at ASH 2013 we shift from discussing radio-immune therapy and listen as Dr. John Pagel starts by agreeing with many of us... Read more

  Posted on 25 May 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. John Pagel Discusses Radio-Immune Therapy (RIT) in Chronic...

  The big buzz at the ASH annual meetings for the last few years has rightly been targeted oral therapies such as ibrutinib and idelasib and other, but one therap... Read more

  Posted on 18 May 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. Neil Kay Discusses More About Clonal Evolutional in CLL (Chronic...

  In the follow-up second part of my discussion from ASH 2013 with Dr. Neil Kay out of Mayo Clinic, we try to tease out what is known about clonal evolution and... Read more

  Posted on 11 May 2014 COMMUNITY, HEALTH

• Celebrating My Two Year Anniversary Today on Ibrutinib for My CLL (chronic...

  Much has happened in the last two years, most of it very good.On a personal note, I swallowed my first 3 battleship grey capsules of PCI-32765 (it wasn't even... Read more

  Posted on 08 May 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. Neil Kay on Why We Need a CLL (chronic Lymphocytic Leukemic) Exper...

  Dr. Neil Kay is Professor of Medicine at Mayo Clinic and also is fellow Canadian who had dedicated his career to helping those of us with CLL through research... Read more

  Posted on 03 May 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. Furman: Idelalisib in Fragile CLL (Chronic LymphocyticLeukemia)...

  I am going to be busy posting several videos from ASH 2013 because some of the new data that I will be discussing from ASCO 2014, May 30-June 3 in Chicago will... Read more

  Posted on 30 April 2014 COMMUNITY, HEALTH

• Another CLL (Chronic Lymphocytic Leukemia) Patient Dies Disease Free from...

  I lost another friend to CLL: a kind and powerful woman who so loved her life filled with friends and strong family support and love. She was an important and... Read more

  Posted on 26 April 2014 COMMUNITY, HEALTH

• My Chronic Lymphocytic Leukemia (CLL): More Good News

  I still have CLL, but less of it.It's in remission and it's actively retreating, but I still have residual disease.Today I learned that my flow cytometry... Read more

  Posted on 21 April 2014 COMMUNITY, HEALTH

• CLL (chronic Lymphocytic Leukemia) Treatment Internationally: We Can't Always Ge...

  Below is an article from the Brampton Guardian.This unfortunate CLL patient can't even get bendamustine and rituximab in Ontario, Canada, let alone ibrutinib... Read more

  Posted on 16 April 2014 COMMUNITY, HEALTH