Bkoffman

LATEST ARTICLES ( 357 )

• Dr. Byrd: "We Are at an Incredibly Exciting Time for Patients and Their...

  

  Cake of CureOK team, we have taken the first giant step in this moon shot. We've safely landed in a new world of disease control with no chemo. Now get us... Read more

  Posted on 10 September 2014 COMMUNITY, HEALTH

• Want to Avoid Chemotherapy Or Taking an Expensive Medication Forever for Your CL...

  

  METHYLPREDNISOLONEI and many others have railed against chemotherapy for our CLL. It may give us a long remission, or not. Your mileage will vary and those of u... Read more

  Posted on 06 September 2014 COMMUNITY, HEALTH

• Forbes Says: "With So Many Terrific New Drugs For Chronic Lymphocytic Leukemia...

  

  Hydra (the mythical monster that grows two heads when you cut off one)Elaine Schattner wrote a provocative and helpful editorial in Forbes: With So Many Terrifi... Read more

  Posted on 01 September 2014 COMMUNITY, HEALTH

• Approval of Imbruvica Frontline for 17p Deleted CLL (Chronic Lymphocytic...

  It's old news (July 28, 2014), but worthy of some reflection that ibrutinib ( PCI-32765 or Imbruvica) was approved frontline in CLL for those of unfortunate... Read more

  Posted on 25 August 2014 COMMUNITY, HEALTH

• The Death of Robin Williams: A Failure of Imagination and What It Means to...

  The death of Robin Williams casts a long pall over millions of us, myself included.How does the amazing and uplifting humor such as produced by Robin Williams'... Read more

  Posted on 17 August 2014 COMMUNITY, HEALTH

• When Sportswriters Cover the Cancer Beat: The Uneven Reporting of the Bob...

  The owners of the NFL team, the Texans, Bob McNair has come out and shared his successful battle with CLL and a very aggressive squamous cell (skin) cancer. Read more

  Posted on 10 August 2014 COMMUNITY, HEALTH

• Zydelig: The Black Box Warnings for Use in CLL (Chronic Lymphocytic Leukemia),...

  Before you get very far into the Zydelig (CAL 101 or GS 1101 or idelasilib) label, you come across a big bold black box warning. Read more

  Posted on 07 August 2014 COMMUNITY, HEALTH

• FDA Approval of Idelalisib (or CAL-101 Or GS-1101 Or Now Zydelig) for CLL...

  It was another good week for those of us with CLL/SLL and our friends with Follicular Lymphoma (FL).CAL-101 AKA GS-1101 AKA idelalisib AKA Zydelig (See Dr. Read more

  Posted on 01 August 2014 COMMUNITY, HEALTH

• ASCO 2014: Dr. Kipps Discusses Targeted Therapy and Obinutuzumab in the Treatmen...

  In the first brief section of my video interview from ASCO 2014, Dr. Tom Kipps, my personal doctor at UCSD, and mentions the buzz about ibrutinib (IMBRUVICA)... Read more

  Posted on 17 July 2014 COMMUNITY, HEALTH

• More Good News- Update on My Lab, CT Scans, and General CLL (chronic...

  My blog has veered far away from the simple telling of my story to more telling of our stories with much B roll. I am making plans to maybe bifurcate its conten... Read more

  Posted on 15 July 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. Byrd on the New Data on Ibrutinib and Obinutuzumub in CLL...

  In my final post from the last days of ASH 2013 (lots more to come from ASCO 2014), my doctor, Dr. John Byrd out of Ohio State (OSU) in the third part of our... Read more

  Posted on 12 July 2014 COMMUNITY, HEALTH

• EHA 2014: Encouraging News on the Pneumonia Vaccine in CLL ( Chronic...

  In all the excitement about the research being presented at ASH and ASCO and EHA on the new therapies for CLL, it is important to remember that infection, mostl... Read more

  Posted on 25 June 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. John Byrd Discusses ONO-4059 and IPI-145 for the Treatment of CLL

  In the second part of my three part interview from ASH 2013 in December 2013 from New Orleans, with my doctor for my clinical trial, Dr. Read more

  Posted on 18 June 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. Byrd Discusses Dinaciclib and the Need for More New Drugs to...

  ASCO 2014 in Chicago was whirlwind with important updates to all of us with CLL.Since returning a week ago, it has been an even crazier pace, but over the next... Read more

  Posted on 12 June 2014 COMMUNITY, HEALTH

• The Exciting Pipeline of New Oral Therapies for CLL (chronic Lymphocytic...

  

  I usually don't simply share links, but there is a nice interview with Dr. Wierda of MD Anderson on how treatment for CLL is changing. Due to scheduling... Read more

  Posted on 30 May 2014 COMMUNITY, HEALTH

• ASH 2013:Dr. John Pagel Discusses the Risks and Benefits of ABT-199 and TRU-016...

  In the final segment of my interview with Dr. Pagel from ASH 2013, he discusses ABT-199 and TRU-016 or otlertuzumab (yet another mouthful for us to poor patient... Read more

  Posted on 29 May 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. John Pagel Speculates on the Future of CLL (chronic Lymphocytic...

  In the second part of our interview at ASH 2013 we shift from discussing radio-immune therapy and listen as Dr. John Pagel starts by agreeing with many of us... Read more

  Posted on 25 May 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. John Pagel Discusses Radio-Immune Therapy (RIT) in Chronic...

  The big buzz at the ASH annual meetings for the last few years has rightly been targeted oral therapies such as ibrutinib and idelasib and other, but one therap... Read more

  Posted on 18 May 2014 COMMUNITY, HEALTH

• ASH 2013: Dr. Neil Kay Discusses More About Clonal Evolutional in CLL (Chronic...

  In the follow-up second part of my discussion from ASH 2013 with Dr. Neil Kay out of Mayo Clinic, we try to tease out what is known about clonal evolution and... Read more

  Posted on 11 May 2014 COMMUNITY, HEALTH

• Celebrating My Two Year Anniversary Today on Ibrutinib for My CLL (chronic...

  Much has happened in the last two years, most of it very good.On a personal note, I swallowed my first 3 battleship grey capsules of PCI-32765 (it wasn't even... Read more

  Posted on 08 May 2014 COMMUNITY, HEALTH