Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 357 )
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Three Year Anniversary on Ibrutinib for My CLL (chronic Lymphocytic Leukemia)
A Man and his PillsOn May 7, 2012, I swallowed my first three battleship grey pills of PCI-32765, later to be known as ibrutinib and finally Imbruvica when... Read more
Posted on 08 May 2015 COMMUNITY, HEALTH -
World Health Organization Calls for Results from All Clinical Trials to Be...
Betsy Dennison is a nurse practitioner and a wonderful educator with whom I have worked for more than five years in a effort to teach family doctors about the... Read more
Posted on 06 May 2015 COMMUNITY, HEALTH -
Questionable Online Advice from a Physician About CLL (chronic Lymphocytic...
OK, class. What is wrong with the advice this syndicated doctor is giving to his inquiring patient?Here is the link to one paper's column so you can read the... Read more
Posted on 07 April 2015 COMMUNITY, HEALTH -
ASH 2014: Rough Notes from Dr. Clive Zent and D.r Wiestner on Prognostic...
I found these notes that I had originally planned to use to develop blog posts based on a lecture that I attended at ASH 2014.I still might do that, but first... Read more
Posted on 29 March 2015 COMMUNITY, HEALTH -
Shared Decision Making, Risk Assessment, and The Doctor- Patient Relationship
Welcome to my world as a practicing physician. Here is your chance to learn of the secret sacrifices we doctors make in the inner sanctum of the temple of... Read more
Posted on 26 March 2015 COMMUNITY, HEALTH -
Experience with Idelalisib (Zydelig) in CLL (chronic Lymphocytic Leukemia)? A...
I received this email today with a link to a survey for those of us who have had experience with idelalisib. It is a chance to help our fellow patients with... Read more
Posted on 24 March 2015 COMMUNITY, HEALTH -
ESH 2014: Dr. Cathy Wu Explains CLONAL HETEROGENEITY in CLL (Chronic...
This is taken from the first of a two part interview with Dr. Cathy Wu in Greece where I spoke on the patients' perspective at a meeting of the Greek... Read more
Posted on 16 March 2015 COMMUNITY, HEALTH -
The Kindness of Strangers: Getting My IVIG to Control My CLL (chronic Lymphocyti...
" I have always depended on the kindness of strangers."Blanche DuBois from A Streetcar Named DesireAs did Blanche, I too have depended on the kindness of... Read more
Posted on 13 March 2015 COMMUNITY, HEALTH -
ITP In CLL (Chronic Lymphocytic Leukemia): Personal And Clinical Reflections
Another great discussion courtesy of ONCLIVE with 4 top CLL experts, from left to right: Drs. Byrd, Furman, Ma, and Kipps.This time they discuss immune... Read more
Posted on 07 March 2015 COMMUNITY, HEALTH -
Frontline Therapies In CLL (Chronic Lymphocytic Leukemia)
In this lively ONCLIVE multi-part series of polite debates among four world class CLL experts (Drs. Byrd, Furman, Ma, and Kipps), I was struck by the... Read more
Posted on 01 March 2015 COMMUNITY, HEALTH -
CLL (Chronic Lymphocytic Leukemia) Patient Education and Empowerment Meeting...
CLL Patient Education and Empowerment Meeting April 23, 2015San Diego, CAYes, I will be there as one of the speakers at CLL Patient Education and Empowerment... Read more
Posted on 16 February 2015 COMMUNITY, HEALTH -
'Double Dare' Host Marc Summers Reveals His Bout with CLL (Chronic Lymphocytic...
From ABC NewsMarc Summers is ingrained in the minds of millions of fans from his iconic run as host of the kids show "Double Dare. Read more
Posted on 12 February 2015 COMMUNITY, HEALTH -
Obinutuzumab in CLL (chronic Lymphocytic Leukemia): Rituximab with an Attitude
This second OncLive video with Drs. Byrd, Furman, Kipps, and Ma was actually the first, the lead-in to my prior post. In fact the last few minutes of this... Read more
Posted on 06 February 2015 COMMUNITY, HEALTH -
Initiation and Discontinuation of Ibrutinib in Chromic Lymphocytic Leukemia (CLL)
It is not often one gets this much brain power and experience with ibrutinib around one table so I am very grateful to OncLive for arranging this discussion... Read more
Posted on 28 January 2015 COMMUNITY, HEALTH -
Blood Cancer Conference in Anaheim on Feb. 7, 2015
We are getting excited about our CLL Society's very first presence at a patient event, especially because it will be at the LLS Blood Cancer Conference on Feb. ... Read more
Posted on 23 January 2015 COMMUNITY, HEALTH -
No More Deaths from CLL (chronic Lymphocytic Leukemia)?
Will there soon be a day that there will be no more deaths from CLL (chronic lymphocytic leukemia)?That may not be possible.The better question is whether we... Read more
Posted on 19 January 2015 COMMUNITY, HEALTH -
This Was Not Supposed to Happen
Dr. Aaron Caplan's widow, Michelle says it best, but it a story with the saddest of endings.This is not a post for the faint of heart, nor is it meant to be a... Read more
Posted on 16 January 2015 COMMUNITY, HEALTH -
There is One Less Doctor/Patient with CLL (chronic Lymphocytic Leukemia) Alive...
More bad news.After a 10 year struggle, a young friend (in his mid 40s) with very young children, a fellow MD with CLL, just passed away from complications of... Read more
Posted on 15 January 2015 COMMUNITY, HEALTH -
ESH 2014: Prof. Stephan Stilgenbauer Discusses Prognostic Factors, FCR and...
In part two of my interview from ESH in November 2014 from Greece with Professor Stilgenbauer of the University of Ulm, Germany we go deeper on the topics we... Read more
Posted on 11 January 2015 COMMUNITY, HEALTH -
Personal Comments on Comments
Just a quick reminder again that I often get comments on my posts that ask for a response, but I never receive your contact information, so if you want to... Read more
Posted on 07 January 2015 COMMUNITY, HEALTH
