Bkoffman
MY BLOGS
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BRIAN KOFFMAN'S AWESOME TRANSPLANT AND CLL ADVENTURE: LEARNING FROM AND ABOUT CANCER
http://bkoffman.blogspot.com/
I HAVE A NEED TO LAUGH, AN UNWILLINGNESS TO ACCEPT THE IMPOSSIBLE, AND A NASTY LEUKEMIA (CLL). BY HAVING A TRANSPLANT EARLY, I WAS HOPING TO SAY "I USED TO HAVE LEUKEMIA" LOOKS LIKE I AM STILL HOPING, THIS TIME IN A CLINICAL TRIAL. BUT THE TELLING OF THE JOURNEY HAS BECOME A JOURNEY ITSELF FOR THIS DOCTOR TURNED PATIENT. I AM DOING MORE TEACHING ON CLL IN PARTICULAR AND OTHER CANCERS IN GENERAL. AFTER ALL, WE ARE ALL IN THIS TOGETHER. EMAIL ME AT [email protected]
LATEST ARTICLES ( 352 )
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Experience with Idelalisib (Zydelig) in CLL (chronic Lymphocytic Leukemia)? A...
I received this email today with a link to a survey for those of us who have had experience with idelalisib. It is a chance to help our fellow patients with... Read more
Posted on 24 March 2015 COMMUNITY, HEALTH -
ESH 2014: Dr. Cathy Wu Explains CLONAL HETEROGENEITY in CLL (Chronic...
This is taken from the first of a two part interview with Dr. Cathy Wu in Greece where I spoke on the patients' perspective at a meeting of the Greek... Read more
Posted on 16 March 2015 COMMUNITY, HEALTH -
The Kindness of Strangers: Getting My IVIG to Control My CLL (chronic Lymphocyti...
" I have always depended on the kindness of strangers."Blanche DuBois from A Streetcar Named DesireAs did Blanche, I too have depended on the kindness of... Read more
Posted on 13 March 2015 COMMUNITY, HEALTH -
ITP In CLL (Chronic Lymphocytic Leukemia): Personal And Clinical Reflections
Another great discussion courtesy of ONCLIVE with 4 top CLL experts, from left to right: Drs. Byrd, Furman, Ma, and Kipps.This time they discuss immune... Read more
Posted on 07 March 2015 COMMUNITY, HEALTH -
Frontline Therapies In CLL (Chronic Lymphocytic Leukemia)
In this lively ONCLIVE multi-part series of polite debates among four world class CLL experts (Drs. Byrd, Furman, Ma, and Kipps), I was struck by the... Read more
Posted on 01 March 2015 COMMUNITY, HEALTH -
CLL (Chronic Lymphocytic Leukemia) Patient Education and Empowerment Meeting...
CLL Patient Education and Empowerment Meeting April 23, 2015San Diego, CAYes, I will be there as one of the speakers at CLL Patient Education and Empowerment... Read more
Posted on 16 February 2015 COMMUNITY, HEALTH -
'Double Dare' Host Marc Summers Reveals His Bout with CLL (Chronic Lymphocytic...
From ABC NewsMarc Summers is ingrained in the minds of millions of fans from his iconic run as host of the kids show "Double Dare. Read more
Posted on 12 February 2015 COMMUNITY, HEALTH -
Obinutuzumab in CLL (chronic Lymphocytic Leukemia): Rituximab with an Attitude
This second OncLive video with Drs. Byrd, Furman, Kipps, and Ma was actually the first, the lead-in to my prior post. In fact the last few minutes of this... Read more
Posted on 06 February 2015 COMMUNITY, HEALTH -
Initiation and Discontinuation of Ibrutinib in Chromic Lymphocytic Leukemia (CLL)
It is not often one gets this much brain power and experience with ibrutinib around one table so I am very grateful to OncLive for arranging this discussion... Read more
Posted on 28 January 2015 COMMUNITY, HEALTH -
Blood Cancer Conference in Anaheim on Feb. 7, 2015
We are getting excited about our CLL Society's very first presence at a patient event, especially because it will be at the LLS Blood Cancer Conference on Feb. ... Read more
Posted on 23 January 2015 COMMUNITY, HEALTH -
No More Deaths from CLL (chronic Lymphocytic Leukemia)?
Will there soon be a day that there will be no more deaths from CLL (chronic lymphocytic leukemia)?That may not be possible.The better question is whether we... Read more
Posted on 19 January 2015 COMMUNITY, HEALTH -
This Was Not Supposed to Happen
Dr. Aaron Caplan's widow, Michelle says it best, but it a story with the saddest of endings.This is not a post for the faint of heart, nor is it meant to be a... Read more
Posted on 16 January 2015 COMMUNITY, HEALTH -
There is One Less Doctor/Patient with CLL (chronic Lymphocytic Leukemia) Alive...
More bad news.After a 10 year struggle, a young friend (in his mid 40s) with very young children, a fellow MD with CLL, just passed away from complications of... Read more
Posted on 15 January 2015 COMMUNITY, HEALTH -
ESH 2014: Prof. Stephan Stilgenbauer Discusses Prognostic Factors, FCR and...
In part two of my interview from ESH in November 2014 from Greece with Professor Stilgenbauer of the University of Ulm, Germany we go deeper on the topics we... Read more
Posted on 11 January 2015 COMMUNITY, HEALTH -
Personal Comments on Comments
Just a quick reminder again that I often get comments on my posts that ask for a response, but I never receive your contact information, so if you want to... Read more
Posted on 07 January 2015 COMMUNITY, HEALTH -
Why Patients Need to Be Heard At Medical Congresses: The Patient's Perspective o...
Here is the hope that this season of miracles offered up its miracles to those of us in need.And if the time is not right for miracles, then let's at least do... Read more
Posted on 03 January 2015 COMMUNITY, HEALTH -
Holding Court: Clive James Writes About the End of Life and CLL (chronic...
Clive James has CLL and is not well, not well in many ways. I want to meet him or at least connect by mail or phone. Any ideas? Read more
Posted on 26 December 2014 COMMUNITY, HEALTH -
Last Chance for the CLL (chronic Lymphocytic Leukemia) Survey and the News...
We are taking down the survey at midnight tonight Pacific Time, so if you haven't completed it, please let us know what will be important to you in a CLL websit... Read more
Posted on 19 December 2014 COMMUNITY, HEALTH -
ASH 2014: Interview with Dr. Susan O'Brien and Dr. Bruce Cheson on CLL (chronic...
There is much to report from ASH 2014, and this sweet interview from Medscape offers a short synopsis of some of the highlights. Read more
Posted on 18 December 2014 COMMUNITY, HEALTH -
ESH 2014: Prof. Stephan Stilgenbauer Reviews Predictive and Prognostic Markers i...
I was asked to present the patient's perspective in CLL at a satellite symposium to the annual congress of the Hellenic Society of Hematology held in... Read more
Posted on 16 December 2014 COMMUNITY, HEALTH