For many of us with hidden diseases, the "but you look well today" or "you can't be sick because your at work" are questions that we know to well! It is one of the hardest things to manage about a hidden disease because most of the time I do look well, so first off please believe me when I say I feel terrible because the truth is I do!
(This is a good day face!!!! I look fine!)
So why do I look so well? Firstly lupus, like many other diseases, is not something that I have a sign on my forehead for! I can cover up rashes with make up, get myself dressed and if I loose weight people think I look great! They just don't realize that it's because I have no appetite to eat!
I know this is a problem that many of us face and the only answer is education and more education! Just because I can go to work or to the pool, it doesn't mean I feel well! Far from it, it means I am trying to live a normal life, trying to get my body used to a routine and desperately trying to live my life!
So next time I say I feel awful just go with it! I don't need sympathy or to be treated differently! I just need to be believed!
What are you experiences of explaining how ill you are when everyone believes you can't be that bad?
