Diaries Magazine


By Babyjandbean
For the most part, I do a pretty good job of keeping a positive outlook for my life and circumstances. But, but, but...I have been feeling sorry for myself lately. My kids and I have been sick, they don't sleep well, they don't eat well and Bean's delays and sensory issues get me down at times. Husband's bus got cancelled which means more money and later nights. I think about going back to work often and then I feel bad for wanting that. Nothing that bad, just whine, cry, boo, hiss...
Then, something puts my life in perspective for me. Today, a Williams Syndrome (WS) mom posted this link on facebook. The link is an article about a young family facing a very challenging time with grace and optimism. Both the mother and father were diagnosed with cancer within nine days of each other. She has stage 4 metastatic breast cancer and he has stage 3 colorectal cancer. They have an 18-month old daughter. They are chronicling their story here. To add even more perspective, the mother that posted this story has a one-month old son with WS. He has spent almost all of his life in the NICU and has already had open-heart surgery. Her story is here and her positivity and optimism is truly inspiring.
After reading these stories, I am reminded that I am no worse off than anyone else. We all face challenges and we all have bad days. I have a three-year-old that behaves live a beast sometimes. My youngest son has WS and related minor health issues as well as developmental issues. He will always have health risks and will likely have intellectual disabilities. I don't remember the last time that I slept for more than two consecutive hours and I don't remember the last time I was able to eat at a favorite restaurant or enjoy a glass of wine. I deal with the daily frustrations and challenges just like everyone else. Boo hoo, right?!?!
PerspectiveIn reality though, I have two beautiful, amazing and (relatively) healthy little boys. I have a wonderful, supportive husband that has worked his butt off for the past two years so that I could stay home with our kids for now. We have the best support network of family and friends and an outstanding team of doctors and therapists. When the time is right, I have the education (thanks, mom!) and experience to find a reasonably paying and satisfying job. I have my health. I have my home. I have my life.
PerspectiveI don't personally know the mother that posted the link above. I only know her from a facebook support group for WS families and from her blog. But I appreciate her sharing the Bond family's story and reminding me that we all face challenges, heartbreak and heartache. I am also inspired by her positivity and by they way she advocates for her sweet son. The stories helped put my life in perspective. It's perfectly normal to have rough days and get caught up in all of life's drama. But in the end, I love my family. I love my boys (husband too!). And I am grateful for all of the support from family and friends as we work through life's little quirks.

You Might Also Like :

Back to Featured Articles on Logo Paperblog

These articles might interest you :

  • Ultimate Circuits South Africa 2017 – Updates 84 Hours

    Ultimate Circuits South Africa 2017 Updates Hours

    Ultimate Circuits South Africa 2017 - Updates 84 Hours Latest results posted at 84 hours. New 48 hour national age group record W60-64 for Martie Boesenberg wit... Read more

    The 25 July 2017 by   Abichal
  • GABF Brewery Participation at Record Levels

    GABF Brewery Participation Record Levels

    Photo: GreatAmericanBeerFestival.com Every year about this time, beer-lovers around the country begin to start scouring the airline sites for cheap flights to... Read more

    The 25 July 2017 by   Marc Wisdom
  • Concert Review: The Last in Line Brought the Volume to Reggie’s

    Concert Review: Last Line Brought Volume Reggie’s

    Photo Credit: Josh Leep Last Thursday night, hundreds of people from all around the Chicagoland area (and some from further away then that) packed themselves... Read more

    The 25 July 2017 by   Urbanmatter Chicago
  • Off to Outdoor Retailer!

    Outdoor Retailer!

    I've only been home from Japan for two days and already it is time to hit the road once again. This time, I'm making the semi-annual trip back to Salt Lake... Read more

    The 25 July 2017 by   Kungfujedi
  • Sedo Weekly Sales Led by Mondly.com

    Sedo reported their weekly sales and Mondly.com was the top sale this week at $25,000. Thf.org sold for $14,500 to lead the other gtlds. Crypto was a theme... Read more

    The 25 July 2017 by   Worldwide
  • Clean Energy For Anyone–Today!

    Clean Energy Anyone–Today!

    GR: Renters and homeowners, here’s an opportunity to switch all your electrical energy to renewable sources. The offer below is from Arcadia Power. Read more

    The 25 July 2017 by   Garry Rogers
  • Run, Bike and Party with Trikini

    Run, Bike Party with Trikini

    MANILA, Philippines – Megaworld Lifestyle Malls shall be presenting a unique active lifestyle event this July 29th, 2017 in McKinley West Park. Read more

    The 25 July 2017 by   Ethel Merioles